Have you experienced a diagnosis of a Neuroendocrine Tumour (NET) – either as a patient, carer or family member?
Are you passionate about improving outcomes for people with NETs?
Are you keen to share your experiences and expertise to influence the development of resources and services provided to communities affected by NETs?
The Unicorn Foundation invites you to consider nominating for a position on our new Consumer Advisory Group (CAG).
This volunteer group will be meeting bi-monthly via teleconference, with the possibility of gaining funding for an annual face to face meeting. The CAG will function as a consumer representative voice for people who have been diagnosed with NETs, and their carers. By working together, the CAG will provide a mechanism for the consumer voice to be addressed, with the overall goal of providing better services and outcomes for people and communities affected by NETs.
We are looking for approximately eight to ten Consumer Advisory Members, with a mixture of patients and carers. Ideally representation will be from a wide range of states and territories (from both regional and metropolitan areas), with a mix of gender, age and ethnicity. Ideally there will also be representation from Aboriginal and Torres Strait Islander heritage.
People who would like to nominate will be asked to provide a written application, addressing key selection criteria. There will be an interview process (via telephone) and all applicants need to be willing to undergo a police and working with children check.
Relevant training will also be provided.
For more information, please see the terms of reference and key selection documents. If you would like to discuss your potential involvement in this group, or have further questions, please email netnurse@neuroendocrine.org.au.
Deadline for expressions of interest March 9 2016
CAG – Key Selection Criteria
https://neuroendocrine.org.au/wp-content/uploads/2020/03/CAG-Key-Selection-Criteria.pdf
CAG – Terms of Reference
https://neuroendocrine.org.au/wp-content/uploads/2020/03/CAG-Terms-of-reference.pdf
