Skip to content
Twitter Facebook-f Youtube Instagram Linkedin
NETs Info
Donate
Close Menu
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • International Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order booklets and other resources
  • Get Involved
    • NET Cancer Day 2022
    • Advocate for us
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us
Donate
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • International Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order booklets and other resources
  • Get Involved
    • NET Cancer Day 2022
    • Advocate for us
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us

Home » Awareness » Introducing Australian Rare Cancer Portal

Introducing Australian Rare Cancer Portal

  • September 1, 2021

Building an online network of rare cancers clinicians and researchers to improve outcomes for patients – introducing the COSA-endorsed Australian Rare Cancer Portal

Australians diagnosed with rare or less common cancers and their doctors face extra challenges compared to those with more common cancers. These challenges include longer diagnosis times and difficulty accessing cancer specialists, molecular testing or specific treatments, as well as difficulties identifying information and support networks. To address this, the Australian Rare Cancer Portal (ARC Portal) has been established as an online platform to all Australian clinicians who are managing a patient with a rare cancers. Clinicians can refer patients to the ARC Portal to obtain streamlined access to rare cancer management guidelines; advice from a panel of Australian and International rare cancer specialists; guidance on molecular testing or interpretation of results; and help identifying clinical trials. Patients referred through the portal also consent toward use of their clinical data, and optionally biospecimens, for research. By providing a Nationwide approach to rare cancer patient and sample accrual, the ARC Portal aims to more rapidly collect clinically annotated rare cancer biospecimens that Australian researchers can access for ethically approved projects. This important initiative has recently been endorsed by COSA.

The Australian Rare Cancer Portal is led by Professors Clare Scott and David Goldstein funded by the Australian Cancer Genomics Medicine Centre (now known as Omico) and is managed by BioGrid Australia. 

Click here to find out more.

Share this post

Subscribe to our eNews

Stay up to date on news and events, clinical trials and new research on neuroendocrine cancers.

Recent posts

World Cancer Day 2023

January 10, 2023

Support Groups Christmas Gatherings

December 20, 2022

NeuroEndocrine Cancer Australia & Norman Family Trust Partnership

December 14, 2022

NeuroEndocrine Cancer Australia partners with Gathered Here to provide the NET community with free online Wills

December 14, 2022
Categories
  • Advocacy
  • Awareness
  • Community Events
  • Education
  • Events
  • Fundraising
  • General
  • In The Media
  • News
  • Research
  • Unicorn Events
PrevPreviousMedicines Australia, Room with a Patient View
NextPeter MacCallum 25th Anniversary of PRRT with Professor Rod HicksNext

Related Posts

World Cancer Day 2023

World Cancer Day: a leading international awareness day to “Close the Care Gap” World Cancer Day held on 4 February every year is the global

NeuroEndocrine Cancer Australia & Norman Family Trust Partnership

NeuroEndocrine Cancer Australia are delighted to announce a new donor partnership. The Norman Family Bequest are funding a NET Nurse Educator in memory of Will

NeuroEndocrine Cancer Australia partners with Gathered Here to provide the NET community with free online Wills

NeuroEndocrine Cancer Australia have partnered with Gathered Here, Australia’s most-trusted end-of-life services site, to offer our supporters a free online will. We are constantly looking

NET Cancer Day 2022

November 10 was NET Cancer Day, a day for all neuroendocrine cancer patients, carers, families and healthcare professionals to unite and help raise awareness of

View All

Make a difference

How much do you wish to donate?
$50
$100
$250
$500
$1000
Other
NeuroEndocrine Cancer Australia logo white
Twitter Facebook-f Youtube Instagram Linkedin

All donations are tax deductible.
Registered Charity CFN 202607

Who We Are

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies

Neuroendocrine Cancers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

For Patients

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise

© 2020 NeuroEndocrine Cancer Australia

  • Website by Five Creative