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Home » High-Level Strategic Plan

NECA High-Level
Strategic Plan 2024 - 2026

Download National Action Plan
Download Strategic Plan

Our Purpose

To raise awareness and understanding of neuroendocrine tumours (NETs), both within the medical profession and the wider Australian public, and provide support to our NET community.

Our Mission

To assist and support patients and carers; lobby for new, appropriate treatments and investigations; raise awareness and knowledge of NETs within the medical community and general public and encourage and support NET Research.

Our Vision

Our vision continues to be the
champions of earlier diagnosis
and a cure for neuroendocrine
cancer.

Our Values

Nurture

Cultivate growth and compassion through patient care and support.

Empower

Ignite confidence to create positive change.

Care

Demonstrate genuine concern and empathy for the well-being of others.

Accountable

Take responsibility for our actions with integrity and transparency.

Our Pillars

We will achieve the strategic priorities through activities that fall within our pillars.

Support

Education

Awareness

Research

Advocacy

Strategic Priorities

These priorities will set the goals we are aiming to achieve in the next 3 years (2023 – 2025).

2024 Goals

2025 Goals

2026 Goals

Support
Increase NET patient support
2024 Goals
  • Secure ongoing funding for 3 NET Nurses
  • Undertake patient resource audit and develop resources to meet unmet needs
  • Continue to allocate nurses and health professionals providing telehealth and referral pathways in each state
  • Expand services to include dietitian and counsellor
» National Action Plan 1 & 2
» Senate Inquiry Recommendation 19, 20, 21 & 27
2025 Goals
  • Secure additional funding to provide ongoing regional &
    rural access to services and
    support
  • Obtain additional nurses
    providing telehealth and
    referral pathways as per ACNNP – Specialist Support Services
2026 Goals
  • Continue to monitor effects of services and introduce additional services to meet our patients needs
  • Continue to increase staff within the allocated budget (Specialist Support Services Grant)
  • Lobby for ongoing funding past 2027 for Specialist Support Services
Education
Increase education
2024 Goals
  • Secure grant funding from federal government (CPSG) for education 
  • Secure grant funding from federal government (CPSG) for education 
  • Implement HCP education—in services/modules
  • Expand distribution of OCP
    amongst HCPs
  • Implement Symptom
    Awareness Campaign
» National Action Plan 3
» Senate Inquiry Recommendation 1,18, 19, 22, 29, 30
2025 Goals
  • Develop medical & nursing
    materials and curriculums
  • Expand presence at relevant
    medical, industry and
    consumer conferences as
    invited speakers
  • Develop PRRT education module for HCPs
  • Develop Dietitian Education
    Modules for implementation
    nationally and internationally
2026 Goals
  • Develop and expand educational resources for multidisciplinary HCPs
  • Garner support for inclusion of educational materials in
    relevant medical/nurse
    curriculums
  • Maintain currency of resources – review regularly and develop additional educational resources
Awareness
Increase awareness and visibility
2024 Goals
  • Increase awareness amongst HCP and general public through F2F meetings, social media
  • Develop and host a dedicated
    annual NET event
  • Promote availability of OCP to wider health & industry
    Networks
  • Continue PR contract to keep momentum
» National Action Plan 4 & 5
» Senate Inquiry Recommendation 18 & 19
2025 Goals
  • Undertake ongoing awareness campaign
  • Host dedicated annual event – nationally and then state events in collaboration
  • Increased media exposure by expanding journalist outreach
  • Development of media kit for MPs & third parties
2026 Goals
  • Increased attendance over previous year s dedicated annual NETs event
  • Expand use of media kit for third parties to use 
  • Enhance media engagement by 15% increase on previous
    year’s media presence
Research
Foster advancements and innovation
2024 Goals
  • Revitalise Neuroendocrine Cancer Registry—PLANET Registry operational in Centres of
    Excellence
  • Recruitment to AUSNET study—nurse led shared care model
  • NECA is acknowledged as
    partner of choice for inclusion
    in international trials and
    projects—key stakeholders—
    ENETs, CommNETs
» National Action Plan 6 & 8
» Senate Inquiry Recommendation 7,8, 16, 17, 34, 35, 36, 38
2025 Goals
  • Secure funding for Genetic/ Genomic Study and commencement of research
  • Increased data entry to PLANET Registry
  • Monitor government funding for NET Research and clinical trials
  • Explore partners in non-government research 
2026 Goals
  • Sustainability of PLANET
  • Enhance consumer education in research to increase participation in research, study and trial development
  • Lobby government for equitable funding including NHMRC & MRFF
Advocacy
Equity of access to treatments (PBS)
Equity of access to diagnostic investigations (MBS)
2024 Goals
  • MSAC submissions
  • Advocate for government to action Senate Inquiry recommendations
  • Lobby MPs
  • Develop advocacy materials for third parties to implement their own representation to
    governments
  • Continued implementation of the National Action Plan
  • Ambassador inclusion
» National Action Plan 2 & 8
» Senate Recommendations 3, 4, 5, 12
2025 Goals
  • Clinical Trial funding (dedicated stream for Rare & Less Common Cancers)
  • Continued implementation of
    the National Action Plan
2026 Goals
  • Continued implementation of the National Action Plan
  • Recognition—secure ongoing funding from Government by lobbying for support services and resources
  • Garner third party support to lobby on NECAs behalf for significant allocation of funding of NETs through major MRFF grant or Federal Budget item
Financial Sustainability
Increase funding
2024 Goals
  • Maintain and enhance 2024/ 2025 funding from existing sources
  • Achieved Federal Government funding for specialist support services program
  • Ongoing Federal Government—grant applications
  • Non-government Grant
    applications
  • Clinical Trial partnerships
  • Corporate Partners
  •  Prebudget Submission
  • Organisation Events for fundraising state and national
» Senate Inquiry Recommendations 18 &19
2025 Goals
  • Government funding—State & Federal for awareness & nursing program
  • Clinical Trials – partnerships & applications for grants NHMRS / MRFF
  • Corporate Partners
  • Prebudget Submission
  • Organisation Events for fundraising state and national
2026 Goals
  • Philanthropic promotion
  • Bequests – Gift in wills
  • Organisation Events for fundraising state and national
  • Corporate Partners
  • Prebudget Submission

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Senate Recommendations: 18 & 19

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 18 & 19 relate specifically to this strategic priority.

Senate Recommendations: 3, 4, 5 & 12

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 3, 4, 5 & 12 relate specifically to this strategic priority.

Senate Recommendations: 7, 8, 16, 17, 34, 35, 36 & 38

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 7, 8, 16, 17, 34, 35, 36 & 38 relate specifically to this strategic priority.

Senate Recommendations: 18 & 19

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 18 & 19 relate specifically to this strategic priority.

Senate Recommendations: 1, 18, 19, 22, 29 & 30

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 1, 18, 19, 22, 29 & 30 relate specifically to this strategic priority.

Senate Recommendations: 19, 20, 21 & 27

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 19, 20, 21 & 27 relate specifically to this strategic priority.

National Action Plan: Key Action 2 & 8

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 2 & 8 relate specifically to this section.

2

Information & resources

Continual development of multi-media resources and information.
8

Targeted research

Targeted call for research (NHMRC/MRFF) for Neuroendocrine Tumours.

National Action Plan: Key Action 6 & 8

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 6 & 8 relate specifically to this section.

6

Data Registry (PLANET)

Data Registry (PLANET).
8

Targeted research

Targeted call for research (NHMRC/MRFF) for Neuroendocrine Tumours.

National Action Plan: Key Action 4 & 5

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 4 & 5 relate specifically to this section.

4

National awareness campaign

A national NET awareness campaign.
5

Optimal Care Pathway

Development and implementation of a National NET Optimal Care Pathway.

National Action Plan: Key Action 3

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action point 3 relates specifically to this section.

3

Education of healthcare professionals (HCPs)

Enhanced education for healthcare professionals.

National Action Plan: Key Action 1 & 2

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 1 & 2 relate specifically to this section.

1

NET specialist telehealth nurses

Support for specialist NET telehealth nurses and oncology social workers.
2

Information & resources

Continual development of multi-media resources and information.