Pictured L to R: Warren Brooks (Ipsen), Nadia Navie (Ipsen), Meredith Cummins (NECA CEO), Brad McKenzie (NET patient), Zoë Teunissen (NECA Intern)
Brad McKenzie (NET patient & NECA Consumer Advisory Board member) and our CEO Meredith Cummins were invited to participate in a workshop with Ipsen Senior Staff to investigate awareness of NETs and ways we could expedite earlier diagnosis.
The workshop objective was to identify mutual areas of interest and practical initiatives for NECA & Ipsen to collaborate on NET awareness and to decrease patients’ time to diagnosis.
The workshop commenced with Brad telling his story then we looked at who are the stakeholders involved in NETs. This included the patient, family, GP, Specialist and Employers to name a few. We identified the issues which can be experienced and the impact of a NETs diagnosis on all the stakeholders. We then brainstormed how we could improve time to diagnosis and what avenues to explore and then how Ipsen & NECA could work together to increase awareness in the general community and to healthcare professionals.
We are very excited to explore and hopefully progress in this much needed area. We also included Zoe Teunissen (our Intern from The Netherlands) to join the workshop and share the work she has done in Europe and what she is planning to do with NECA, looking at communication and the impact of the NET Optimal Care Pathway.