Patient Stories

On 9th July 2012 out of the blue I woke up with my heart racing, skipping, in a cold sweat, chronic stabbing pains with blood pouring out of me.

I was first diagnosed with NET’s in October 2010 after the discovery of a mass in my pancreas.  I had been unwell and lived with symptoms for about 4 years and for a while I actually thought that I might have ovarian cancer as the symptoms were very similar (according to the adverts on TV).

It was New Years Eve 2010 when this ultrasound showed I had spots on my liver and a follow up CT scan that day showed a mass on my pancreas. While people around me prepared for new years eve celebrations I was trying to imagine how my boys would live without me and how my wonderful husband would cope with it all.

Our eldest daughter Tayla had an ultrasound, MRI and CAT scan just days before, all which detected a mass in her abdomen, this warranted further investigation by the hospital. Even more bizarre was the fact that she had found this lump herself.