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Home » Patient Stories » Page 3

Patient Stories

Read more about the experiences of fellow NET patients and also check out our Patient Stories videos on Youtube.

Ann, VIC

If you are recently diagnosed with Carcinoid Cancer your shock, dismay, stress, and anxiety level does not change, but you learn to deal with it as time passes. It is worth noting how things HAVE changed and improved over the years.
View Ann, VIC's Story

Steven, TAS

When I finally found NECA – I finally had accurate up the minute information – we could breathe. The relief was palpable. Knowing there was something and someone there to support us – we had someone on the other end of the phone. We were greeted with kindness, knowledge and a sympathetic ear, there were so many resources that we could watch and download as well as support groups to join. 
View Steven, TAS's Story

Jacqueline, NSW

When I think about symptoms to diagnosis, it was probably about 7 years.
View Jacqueline, NSW's Story

Jeffrey, VIC

At age 75, I remain in perfect health and have no symptoms from the disease or treatment. I maintain an active lifestyle and walk 10 kms most days, as well as cycle, swim, kayak and maintain my house and garden. I eat an anti-inflammatory diet and keep my weight in trim.
View Jeffrey, VIC's Story

Suzie, NSW

Looking back, I had lower right pain (in my body) for two years prior… I just knew something didn’t add up
View Suzie, NSW's Story

Mel, WA

They found a tumour about the size of a tennis ball on my pancreas… It’s a shame that it takes a diagnosis like this to change the way people live their life.
View Mel, WA's Story

Sandi, NSW

Being told you have an incurable cancer is a big moment to process… My symptoms were quite acute and they had a very sudden onset. Abdominal pain, cramping, vomiting, sweating
View Sandi, NSW's Story

Brad, WA

4-6 months before diagnosis I was losing a lot of weight…I was on a holiday in Hawaii and I just couldn’t stomach any food
View Brad, WA's Story

Jamie, SA

In 2010 when Jamie was only 32 years old, with a 6-month-old baby at home and the world at her feet, she was diagnosed with a mid-gut neuroendocrine tumour (NET).
View Jamie, SA's Story

Bree, NSW

About a week or so after Zara was born and Bree was at home, she found herself on the shower floor in pain and new she needed to return to the hospital for answers.
View Bree, NSW's Story
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