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Home » Patient Stories » Brian, ACT

Brian, ACT

My Husband died 5 days before his 70th birthday on 21 October 2023.

In 2017 Brian was diagnosed with prostate cancer and it was aggressive with a 9 out of 10 rating on the Gleason scale. He immediately had surgery, chemo, radiation and then hormone therapy. He coped well and never complained. However, the treatment caused side effects such as weight gain.

We always thought if cancer did come back there would be treatment options and any flare ups related to his prostate cancer. To our horror just a few years later Brian was diagnosed with another type of cancer – this time Neuroendocrine Cancer. We were absolutely destroyed as the diagnosis was very grim.

Brian was diagnosed in January 2023 and the cancer was mainly in his liver but also other sites like lungs. If he didn’t have treatment,  he was given a few months to live and with treatment maybe 1 – 2 years. He started chemo immediately.

With determination and always a positive spirit Brian started chemo three times a week with two weeks off and this lasted for six treatment cycles. In May/June 2023 he had a break in treatment, but a pet scan showed he needed more chemo. Sadly, it really did nothing and he didn’t finish the last cycle. From initial diagnosis to death it was a mere 9 months! I said when he died I needed to do something in his honour (other than donations) and I am willing to share his story. This is a horrible cancer and diagnosis just comes too late. Brian had really no clear symptoms and if he hadn’t complained about a sore arm I am not sure what would have happened. His GP ordered a CT scan in December 2022 and then January came, and reality hit us. I miss him every day and he had so much more to give.

 

Patient Stories

Cassie, QLD

I’m a 36-year-old mum of three little humans – things like this just doesn’t happen to people like me. Until all of a sudden it does, and everything changes

Lana, NSW

Blurry vision had led to a diagnosis of Von Hippel-Lindau (VHL) disease – a condition where multiple tumours grow in various parts of the body, including the brain, spinal cord, abdominal organs, and eyes.

Simon, VIC

We need greater awareness of VHL, better education for healthcare professionals, and up-to-date resources to guide patients through diagnosis and care.

Vanessa, ACT

I was in my late twenties when I first realised something wasn’t right. I began experiencing numbness in my back, and after months of tests and uncertainty, doctors discovered a cluster of tumours in my spine. That’s when I was diagnosed with VHL.

View All

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