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Kim Verlin

What impact has NEC had on your life?

I was diagnosed with high grade Neuroendocrine Carcinoma with a lung primary and brain mets the Friday before Christmas 2016 (NEC is a type of very fast growing neuroendocrine tumour, grade 3b). My prognosis was six months. I had to quit my job on the spot – I had to start whole brain radiation immediately, followed by 8 rounds of chemo. I’m not allowed to drive because of the risk that I have a seizure. I have a lot of fatigue. The silver lining is that I’ve had a lot of time to travel and spend time making memories with my loved ones.

 What has been most helpful to you in your NEC experience?

The unwavering support of my husband, and Kate, our fabulous nurse. It’s a complicated illness that impacts everyone in a different way.

What advice would you give to a newly diagnosed patient?

  • Get copies of all your scans and medical reports as this will help with your doctors as well as insurance 
  • There are no stupid questions
  • Take everything one day at a time

 

(see pic of me below at the Peter Mac resort)

Patient Stories

Greg, QLD

Greg’s symptoms included tiredness, fatigue and diarrhoea.

Cathy, QLD

Cathy’s symptoms were fatigue, diarrhoea and anxiety.

Cindy, NSW

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.

Caitlin, TAS

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.

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