1. What impact has NETs had on your life?
I was diagnosed in 2011 at the age of 24, I can honestly say cancer had never entered my mind and it never seemed like something that could happen to me. I like to refer to this as my ‘reality check’. Not only did this impact so much of my life but it’s also changed me and what’s important to me. I’m very thankful for the amazing people in my life that supported me through my diagnosis and treatment and who continue to support me with the ongoing appointments, PET scans and blood tests.
2. What drew you to become involved in the CAG?
I am a very passionate person and I love to get involved. I became involved with the CAG to raise awareness of NETs and I feel very strongly about advocating for changes to our health system, access to scans, drugs and ensuring that the treatment and monitoring required is available EQUALLY to all NETs patients. The CAG is a great opportunity for me to give back and do what I can so support other NET’s patients.
3. What advice would you to give to a newly diagnosed patient? What has been most helpful to you in your NET experience?
My advice would be to give yourself time to take in all the information that is often being pushed in front of you, it can be really overwhelming and often the medical system sweeps you up and carries you away.
It’s really important to take a breath and consider what is right for you. The most helpful thing for me was understanding what was going to happen – so ask questions and make sure you fully understand the answers you are given.
It was really important to me to talk things through with my support network and gain the emotional support I needed. Do what is right for you, get the information you need to feel comfortable and don’t be afraid to ask for support because you are never alone.