Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Fact Sheets
Booklets & Guides

About NETs

Booklets & Guides

Acronyms & Terminology for Neuroendocrine Cancer Patients

Treatment Options

Anatomic Distribution of Neuroendocrine Tumours

Booklets & Guides

Associated Conditions

Booklets & Guides

Basic Testing sheet for GastroEnteroPancreatic (GEP) Neuroendocrine Tumors (NETs)

Getting Diagnosed

Biopsy Procedures in Neuroendocrine Cancer Diagnosis

Getting Diagnosed

Blood Tests for Neuroendocrine Tumours

Advocacy & Awareness Videos

Brad’s Story

Educational Videos

Brisbane NET Forum 2019 Hereditary Syndromes AMANDA LOVE

Support Groups

Cancer Council Telephone Support Group

Causes & Risk Factors

Cellular Mutations in Neuroendocrine Cancer

Getting Diagnosed

Challenges in Diagnosing Rare Neuroendocrine Tumours

Treatment Options

Chemotherapy for Neuroendocrine Tumours

Fact Sheets

Clinical Trials

Getting Diagnosed

Common Sites of Neuroendocrine Tumour Occurrence

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.