Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Fact Sheets
Causes & Risk Factors

Abdominal Pain in NETs

Booklets & Guides

About NETs

Booklets & Guides

Acronyms & Terminology for Neuroendocrine Cancer Patients

Causes & Risk Factors

Age and Gender as Risk Factors for NETs

Booklets & Guides

Associated Conditions

Clinical Trials

AUS-NET – Neuroendocrine Tumours

To improve patient quality of life and develop a cost-effective system that can be implemented across other rare cancers in the future.
Other Resources

Australian Patient Travel Subsidy Scheme

Booklets & Guides

Basic Testing sheet for GastroEnteroPancreatic (GEP) Neuroendocrine Tumors (NETs)

Getting Diagnosed

Biopsy Procedures in Neuroendocrine Cancer Diagnosis

Getting Diagnosed

Blood Tests for Neuroendocrine Tumours

Educational Videos

Brisbane NET Forum 2019 Hereditary Syndromes AMANDA LOVE

Support Groups

Cancer Council Telephone Support Group

Fact Sheets

Carcinoid Crisis

Fact Sheets

Carcinoid Crisis and Anaesthesia

Fact Sheets

Carcinoid Heart Disease

Tax Appeal

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Help 31,000+ neuroendocrine cancer patients get the specialised care they deserve.

Every dollar raised is fully tax deductible and helps fund much needed advocacy efforts and patient support.