Overview
We hear only too frequently, the impact of costs of treatment, for people living with NETs.
The Cancer Council have recently been doing some significant work in the area of Informed financial consent. This requires patients to have information and support to make informed decisions about their care.
This week we were very pleased to be able to welcome Megan Varlow, the Director of Cancer Control Policy at Cancer Council Australia, who joined us for this week’s Facebook Friday conversation. Megan has been at the forefront of the work that has been done by Cancer Council in this area, and shared her insights and reflections on this important area.
Notes:
Cancer Council online information about informed financial consent:https://www.cancer.org.au/support-and-services/practical-and-financial-assistance/what-will-i-have-to-pay-for-treatment
Australian Patients Association guide for patients about doctors’ fees:
https://www.ombudsman.gov.au/__data/assets/pdf_file/0016/35611/Doctors-Bill-DL-Fyler-Web.pdf
Australian Department of Health information about out of pocket costs: https://www.health.gov.au/health-topics/private-health-insurance/what-private-health-insurance-covers/out-of-pocket-costs
Cancer Council Pro Bono Program: https://www.cancer.org.au/support-and-services/practical-and-financial-assistance/pro-bono-program
Cancer Council Information and Support Service: 13 11 20
National Debt Helpline: 1800 007 007
Direct NETs Study: https://direct-nets.com/
Telehealth Study (for people in Victoria): https://www.cancervic.org.au/about/stories/telehealth-research-project.html
To contact Kate, email NETNurse@neuroendocrine.org.au or call 1300 287 363.
This video was originally broadcast into our Facebook Private Discussion Group. If you are affected by NETs (either as a patient or carer) and in Australia, you’re welcome to join this group – www.facebook.com/groups/472805285594/ (once you click on “Join Group”, you will be guided to answer three questions, so we can approve your membership). Our Carers group is at www.facebook.com/groups/797093257354706
Please note that the information provided in this video is general, and not intended to be a substitute for professional advice. Always seek the guidance of your doctor or other qualified professional with any questions you may have regarding your own health or a medical concern.
