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MP Info Kit
Whether you’re an MP, an advocate, or someone wanting to learn more, this kit brings together the essential facts about neuroendocrine cancer in Australia and the work we do at NeuroEndocrine Cancer Australia.
Be a voice for change in neuroendocrine cancer care and awareness.
Neuroendocrine cancer is the 7th most commonly diagnosed cancer in Australia, yet it remains widely misunderstood. Many patients wait 5 to 7 years for a diagnosis and face unequal access to the care and treatments they need.
As a Member of Parliament, you can help change this.
Why this matters to your electorate
More than 31,000 Australians are living with neuroendocrine cancer, with around 5,700 people diagnosed each year. Many experience long diagnostic delays, are misdiagnosed, or only receive a diagnosis once their disease has progressed.
For patients and families, this means:
- Delayed access to the right care and treatment
- Increased reliance on emergency departments at diagnosis
- Travel long distances to access specialist services
- Ongoing financial and emotional strain
For the health system, delayed diagnosis and fragmented care pathways increase pressure and costs.
Improving outcomes for people with neuroendocrine cancer is not just a clinical issue, it is an equity issue.
How We Can Work Together
1
Support National Policy Change
Current NECA policy priorities include:
- Funding for specialist NET nurses in each state
- Improving access to early diagnosis through imaging and biomarker pathways
- Fair and transparent access to medicines through HTA reform
- Implementing the Government response to the Senate Inquiry
- Supporting improved access to clinical trials across Australia through stronger national trial networks, clearer referral pathways, and reduced geographic barriers
We can brief your office at any time.
2
Hear From Your Constituents
Many Australians in your electorate are affected by neuroendocrine cancer.
NECA can:
- Provide local patient stories
- Connect your office with advocates
- Share local statistics
3
Meet With Our Team
MPs and advisors play a vital role in improving outcomes for people living with neuroendocrine cancer. Meeting with NECA’s team helps ensure you have the latest information on patient needs, service gaps, and national priorities.
We can:
- Provide tailored briefings on the issues affecting your electorate
- Discuss emerging priorities and unmet needs in neuroendocrine cancer care
- Share insights from clinicians, researchers, and advocates
These conversations help guide meaningful action in Parliament and across the health system.
4
Attend Our Parliamentary Events
NECA hosts briefings, panel discussions and awareness events at Parliament House from time to time. These sessions bring together clinicians, patient advocates, policy leaders, and industry experts to highlight the needs of people living with neuroendocrine cancer.
We welcome your involvement in these important conversations that help shape cancer care in Australia.
5
Access MP Resources
NECA can provide:
- Electorate-specific briefing packs
- Fact sheets on neuroendocrine cancer
- Policy summaries and submissions
- Media resources for awareness days
Resources for State and Territory Representatives
These state and territory snapshots have been developed to help Members of Parliament better understand the impact of neuroendocrine cancer in their communities.
Each report includes local prevalence data, patient perspectives, and insights into how specialist support services are helping Australians navigate a complex cancer journey. Together, they provide a picture of the challenges, opportunities and unmet needs facing people affected by neuroendocrine cancer across Australia.
Select your state or territory below to download a local snapshot.
Helpful Resources
Fact Sheets
5HIAA
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Forum Videos
Adelaide NET Patient Forum 2023
Forum Videos
Adelaide NET Patient Forum 2025
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Treatment Options
Anatomic Distribution of Neuroendocrine Tumours
Booklets & Guides
