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National Action Plan
Click here to view the 8 key actions and download the National Action Plan
Find out more
Everything you need to know about NETs
Prevention, early diagnosis and long and short term treatment.
What are NETS?
Help us to provide support
Neuroendocrine cancers affect men, women and children of all ages. There is currently no cure. Help us provide specialised care.
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NeuroEndocrine Cancer Australia
Champions for early diagnosis and a cure.
Who we are
Fundraise with us
Be it walking, running, swimming, quitting, shaving or colouring your hair - or maybe a morning tea, this downloadable fundraising guide is as easy to follow as 1, 2, 3.
Download Guide Here
Kim’s story
I was diagnosed with a high grade Neuroendocrine Carcinoma the Friday before Christmas. My prognosis was 6 months
Read Kims story
INFO4NETS
The INFO4NETs platform is an online tool that can be used to source information resources about Neuroendocrine Tumours (NETs). This tool will link you to relevant resources based on information needs identified by you, the user.
Start Now
COVID-19 Information and Resources
We want to take this time to reassure our community that we are set up for moving everything online and will continue to offer quality support services to our patients.
Read our update

The facts

%

50%

Almost 50% of patients diagnosed report being misdiagnosed with more common diseases such as IBS or anxiety.

5,437

On average 5,437 people (2,846 males and 2,591 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

%

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

Learn more about NETs

NETs Info

Gain access to specialised neuroendocrine information.

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I am a patient

Find patient specific resources and support.

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I am a HCP

Gain access to all HCP resources, articles and registries.

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Get involved

Want to help improve the lives neuroendocrine patients?

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Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$50

$100

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$1,000

Provides telephone support through our specialist Net Nurse helpline.

Will help us provide online resources for patients, carers and health professionals, as well as research into quality of life issues.

Helps us facilitate over 80 peer to peer support groups around the country each year.

Allows us to organise 3 large patient education forums each year.

Allows us to help fund life changing research including the Planet Registry and patient app, control NETs, financial toxicity and nutrition in NETs.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

Support

Education

Research

Awareness

Advocacy

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Patient stories

Greg, QLD

Greg’s symptoms included tiredness, fatigue and diarrhoea.
View Greg, QLD's Story

Cathy, QLD

Cathy’s symptoms were fatigue, diarrhoea and anxiety.
View Cathy, QLD's Story

Cindy, NSW

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.
View Cindy, NSW's Story

Caitlin, TAS

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.
View Caitlin, TAS's Story

Wendy, Caloundra, QLD

Although educating healthcare professionals and the general public about the disease is too late for me. I advocate for this to happen so that no future patient has to go through what has happened to me.
View Wendy, Caloundra, QLD's Story

Michelle, NSW

What I have learned is appropriate referral is so important. For me a partial diagnosis came 3 years after my 1st hypertensive crisis. Full diagnosis and treatment took another 4 years.
View Michelle, NSW's Story

News

Get up to date with the latest news and stories from NeuroEndocrine Cancer Australia and our community of supporters, patients and medical practitioners.
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ENETS Conference 2023

March 27, 2023

Michael Doyle Live Wake Fundraiser

February 4, 2023

Optimal Care Pathway now available for NETs

January 31, 2023

World Cancer Day 2023

January 10, 2023

Support Groups Christmas Gatherings

December 20, 2022

NeuroEndocrine Cancer Australia & Norman Family Trust Partnership

December 14, 2022

Subscribe to our eNews

Stay up to date on news and events, clinical trials and new research on neuroendocrine cancers.

Events

Learn about upcoming events hosted by NeuroEndocrine Cancer Australia and the NETs community.
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Living with NETS

March 14, 2023: 1:30 pm
After a successful launch of the “Living with NETs” Program for patients and carers in 2022, NECA is now offering another intake in 2023.
More Info

Make a difference

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Registered Charity CFN 202607

Who We Are

  • About Us
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  • About Us
  • Our People
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  • International Advisory Panel
  • Governance & Policies

Neuroendocrine Cancers

  • What are Neuroendocrine Cancers?​
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  • What are Neuroendocrine Cancers?​
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