Advocate for Us

31,000+ Australians living with NETs will face reduced life expectancy due to late diagnosis.
60% of NET patients are diagnosed at Stage 4
Silent but deadly: Over half of all NET patients face a late diagnosis.
A 160% increase in new patient calls to our NET Nurse.
Support the call for more specialist NET Nurses today.
Every 90 minutes another Australian is diagnosed with neuroendocrine cancer.
There are 31,000+ Australians living with neuroendocrine cancer in Australia.

Help us advocate for our NET patients

Advocate for better outcomes in neuroendocrine cancer

Neuroendocrine cancer is the 7th most commonly diagnosed cancer in Australia, yet many people face long delays to diagnosis and unequal access to care.

NeuroEndocrine Cancer Australia advocates across a range of priorities to improve outcomes, including access /to diagnosis, treatment, specialist care and support services.

While we continue to advocate across a range of priorities, we welcome your support on advocacy around the following key priority:

Secure ongoing funding for specialist support services

NeuroEndocrine Cancer Australia’s Specialist Support Services, including access to NET specialist nurses, provide essential support to people navigating a complex and often delayed diagnosis.

These services are currently funded until 2027. Without long-term funding, patients risk losing access to care they rely on.

We are calling on the Australian Government to:

  • Provide long-term, sustainable funding for Specialist Support Services beyond 2027
  • Ensure all Australians with neuroendocrine cancer can access specialist nurse support, no matter where they live

How can you help

Contact your Federal MP

Federal Government funding decisions will determine whether these services continue.

By contacting your local Federal MP, you can help ensure people with neuroendocrine cancer are not left without support.

How to take action

  1. Find your local Federal MP
  2. Send them an email/letter using our template
  3. Share why this matters to you or your community

Download Sample Letter here.

 

Find Your Federal MP

Our broader advocacy

In addition to this current priority, we continue to advocate for:

  • Earlier and more accurate diagnosis
  • Improved access to diagnostics, treatments and clinical trials
  • Sustainable funding for specialist care and support
  • Implementation of national commitments to equitable cancer care

We’re here to support you

If you would like help contacting your MP or sharing your story, our team can support you.

Email Us

Help us spread the word

In addition to reaching out to your local and federal MP, you can help raise awareness of the Senate recommendations across social media.

Download these tiles, upload onto your social media account, add your words, and tag your local or federal MP online. Every touchpoint helps!

Download Social Media Tiles here.

Download Social Media Stories Here.

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