Twitter Facebook-f Youtube Instagram Linkedin
NETs Info
Donate
Close Menu
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • Research Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
  • Get Involved
    • NET National Action Plan
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Bequests
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us
Donate
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • Research Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
  • Get Involved
    • NET National Action Plan
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Bequests
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us
National Action Plan
Click here to view the 8 key actions and download the National Action Plan
Find out more
Everything you need to know about NETs
Prevention, early diagnosis and long and short term treatment.
What are NETS?
Help us to provide support
Neuroendocrine cancers affect men, women and children of all ages. There is currently no cure. Help us provide specialised care.
Donate now
NeuroEndocrine Cancer Australia
Champions for early diagnosis and a cure.
Who we are
Kim’s story
I was diagnosed with a high grade Neuroendocrine Carcinoma the Friday before Christmas. My prognosis was 6 months
Read Kims story
INFO4NETS
The INFO4NETs platform is an online tool that can be used to source information resources about Neuroendocrine Tumours (NETs). This tool will link you to relevant resources based on information needs identified by you, the user.
Start Now
COVID-19 Information and Resources
We want to take this time to reassure our community that we are set up for moving everything online and will continue to offer quality support services to our patients.
Read our update

The facts

%

50%

Almost 50% of patients diagnosed report being misdiagnosed with more common diseases such as IBS or anxiety.

5,178

On average 5,178 people (2,723 males and 2,455 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

%

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

Learn more about NETs

NETs Info

Gain access to specialised neuroendocrine information.

Read More

I am a patient

Find patient specific resources and support.

View All

I am a HCP

Gain access to all HCP resources, articles and registries.

View All

Get involved

Want to help improve the lives neuroendocrine patients?

View All

Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$50

$100

$250

$500

$1,000

Provides telephone support through our specialist Net Nurse helpline.

Will help us provide online resources for patients, carers and health professionals, as well as research into quality of life issues.

Helps us facilitate over 80 peer to peer support groups around the country each year.

Allows us to organise 3 large patient education forums each year.

Allows us to help fund life changing research including the Planet Registry and patient app, control NETs, financial toxicity and nutrition in NETs.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

Support

Education

Research

Awareness

Advocacy

Learn More

Patient stories

Bob, Culburra Beach, NSW

Having a family history of cancer, both mother and father, my own diagnosis of NETs probably shouldn’t have taken me by surprise but it did.
View Bob, Culburra Beach, NSW's Story

Birgitte, South Australia

I have fully recovered from the surgery recovering and feeling terrific, and I hardly think about my NET. I am extremely grateful for the early diagnosis, that Australia invests in free bowel screening tests, and that we have excellent medical staff, facilities and treatments. I’m the happiest I have ever been in my life.
View Birgitte, South Australia's Story

Doreen, Western Australia

Through attending NET meetings at FSH I was made more aware of NETS and found friendship and understanding from all who attended plus I had found a ‘home’ where others understood. 
View Doreen, Western Australia's Story

David Lockwood

I have Neuroendocrine cancer. No one should feel alone and this is my #CancerKindness story.
View David Lockwood's Story

Kristen Leknius

After almost 5 years of misdiagnoses, Kristen was diagnosed with NETs at only 43 years of age. Kristen’s initial diagnosis was grim, thankfully a second opinion and access to PRRT treatment successfully reduced her tumour and gave Kristen a second chance at life.
View Kristen Leknius's Story

Demi Gough

On the 8th of October 2019 I found out I was expecting my second child. Less than two weeks later I was rushed in for emergency surgery for appendicitis. Two weeks after the surgery I was diagnosed with a NET inside my removed appendix
View Demi Gough's Story

News

Get up to date with the latest news and stories from NeuroEndocrine Cancer Australia and our community of supporters, patients and medical practitioners.
View All

NeuroEndocrine Cancer Australia & Macquarie University study on important online resources for NET patients.

May 2, 2022

University of South Australia -Volunteers needed nationally.

April 27, 2022

Expression-of-Interest for consumer participation on Grant Review Committees for the 2022 Priority-driven Collaborative Cancer Research Scheme

April 27, 2022

When The Phone Rings

March 28, 2022

Fedez Pancreatic Neuroendocrine Tumour diagnosis

March 25, 2022

ENETS 2022

March 11, 2022

Subscribe to our eNews

Stay up to date on news and events, clinical trials and new research on neuroendocrine cancers.

Events

Learn about upcoming events hosted by NeuroEndocrine Cancer Australia and the NETs community.
View All

Make a difference

How much do you wish to donate?
$50
$100
$250
$500
$1000
Other
NeuroEndocrine Cancer Australia logo white
Twitter Facebook-f Youtube Instagram Linkedin

All donations are tax deductible.
Registered Charity CFN 202607

Who We Are

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • Research Advisory Panel
  • Governance & Policies
Menu
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • Research Advisory Panel
  • Governance & Policies

Neuroendocrine Cancers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
Menu
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

For Patients

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
Menu
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
Menu
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise

© 2020 NeuroEndocrine Cancer Australia

  • Website by Five Creative