What I have learned is appropriate referral is so important. For me a partial diagnosis came 3 years after my 1st hypertensive crisis. Full diagnosis and treatment took another 4 years.
Almost 50% of patients diagnosed report being misdiagnosed with more common diseases such as IBS or anxiety.
On average 5,178 people (2,723 males and 2,455 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.
60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).
Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.
NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.
We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.
NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure
All donations are tax deductible.
Registered Charity CFN 202607
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