NeuroEndocrine Cancer Australia - formerly the Unicorn Foundation

RACGP Neuroendocrine Tumour Education Course

This course is for Health Care Professionals only. Join our patients in an interactive, case based online activity, on how to diagnose and treat Neuroendocrine Tumours (NETs) in General Practice.

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New Normal Same Cancer

Learn more about this vital campaign here.

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Everything you need to know about NETs

Prevention, early diagnosis and long and short term treatment.

What are NETS?

Help us reach our target for additional NET Nurses.

Every dollar raised brings us one step closer to being able to support more patients every month.

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COVID-19 Information and Resources

We want to take this time to reassure our community that we are set up for moving everything online and will continue to offer quality support services to our patients.

Read our update

Help us to provide support

Neuroendocrine cancers affect men, women and children of all ages. There is currently no cure. Help us provide specialised care.

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NeuroEndocrine Cancer Australia

Champions for early diagnosis and a cure.

Who we are

INFO4NETSs

The INFO4NETs platform is an online tool that can be used to source information resources about Neuroendocrine Tumours (NETs). This tool will link you to relevant resources based on information needs identified by you, the user.

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Kim’s story

I was diagnosed with a high grade Neuroendocrine Carcinoma the Friday before Christmas. My prognosis was 6 months

Read Kims story

The facts

50%

Almost 50% of patients diagnosed report being misdiagnosed with more common diseases such as IBS or anxiety.

4,972

On average 4,972 people (2629 males and 2343 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

NETs Info

Gain access to specialised neuroendocrine information.

I am a patient

Find patient specific resources and support.

I am a HCP

Gain access to all HCP resources, articles and registries.

Get involved

Want to help improve the lives neuroendocrine patients?

Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$50

$100

$250

$500

$1,000

Provides telephone support through our specialist Net Nurse helpline.

Will help us provide online resources for patients, carers and health professionals, as well as research into quality of life issues.

Helps us facilitate over 80 peer to peer support groups around the country each year.

Allows us to organise 3 large patient education forums each year.

Allows us to help fund life changing research including the Planet Registry and patient app, control NETs, financial toxicity and nutrition in NETs.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

Support

Education

Research

Awareness

Advocacy

Patient stories

Birgitte, South Australia

I have fully recovered from the surgery recovering and feeling terrific, and I hardly think about my NET. I am extremely grateful for the early diagnosis, that Australia invests in free bowel screening tests, and that we have excellent medical staff, facilities and treatments. I’m the happiest I have ever been in my life.

Doreen, Western Australia

Through attending NET meetings at FSH I was made more aware of NETS and found friendship and understanding from all who attended plus I had found a ‘home’ where others understood.

Jackie, NSW

Contact Neuroendocrine Cancer Australia – my Go-To Place for detailed, factual, accessible information about Neuroendocrine Cancer – and for information to pass on to family and to medical professionals.

David Lockwood

I have Neuroendocrine cancer. No one should feel alone and this is my #CancerKindness story.

Kristen Leknius

After almost 5 years of misdiagnoses, Kristen was diagnosed with NETs at only 43 years of age. Kristen’s initial diagnosis was grim, thankfully a second opinion and access to PRRT treatment successfully reduced her tumour and gave Kristen a second chance at life.

Demi Gough

On the 8th of October 2019 I found out I was expecting my second child. Less than two weeks later I was rushed in for emergency surgery for appendicitis. Two weeks after the surgery I was diagnosed with a NET inside my removed appendix

News

Get up to date with the latest news and stories from NeuroEndocrine Cancer Australia and our community of supporters, patients and medical practitioners.