NeuroEndocrine Cancer Australia

Champions of early diagnosis and a cure

Our Vision

Our role is vital to the lives and outcomes of those impacted by neuroendocrine cancer.

Our vision is clear: to assist patients and carers, lobby for new treatments and investigations, raise awareness among the medical community and public about NETs, and support Australian research in neuroendocrine cancers. To achieve this, we’ve developed a National Action Plan for nationwide improvement in neuroendocrine cancer care and research.

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Australians are diagnosed with neuroendocrine tumours each year

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Australians are currently living with neuroendocrine cancer

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The average Australian waits over 5 years for a correct diagnosis

Optimal Care Pathway

Supporting your journey when you need it the most.

To improve the care and experience of patients across Australia suffering from Neuroendocrine Tumour (NET), an Optimal Care Pathway (OCP) is now available to ensure NET patients receive the right care, at the right time, in the right place.

Patient Stories

In 2010 when Jamie was only 32 years old, with a 6-month-old baby at home and the world at her feet, she was diagnosed with a mid-gut neuroendocrine tumour (NET).

Jamie, diagnosed

2010

Experiencing symptoms of fatigue, tiredness, and anxiety, I couldn’t ignore the significance of my condition, especially considering my family history.

Rob, diagnosed

2020

Having two Primary NETs two years apart is incredibly rare. It highlights that there is still much to learn about this kind of cancer.

John, diagnosed

2020

I have fully recovered from the surgery and I’m feeling terrific, and I hardly think about my NET. I am extremely grateful for the early diagnosis.

Birgitte, diagnosed

2020

I have the same cancer that singer, and queen of soul, Aretha Franklin and Apple CEO, Steve Jobs had, neuroendocrine cancer (NETs).

David, diagnosed

2018

I had an ultrasound for an unrelated medical condition. The radiographer identified a differential diagnosis… a neuroendocrine tumour (NETs).

Jacky, diagnosed

2012

I was diagnosed in 2011 at the age of 24, I can honestly say cancer had never entered my mind and it never seemed like something that could happen to me.

Melissa, diagnosed

2011

I was diagnosed with NETS in May 2017, a biopsy of my ovary revealed the news. It was almost a relief to know why I was experiencing the symptoms I had been…

Margaret, diagnosed

2017

The 5 Pillars

NeuroEndocrine Cancer Australia is the only non-for-profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by the following five pillars:

Support

Education

Research

Awareness

Advocacy

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NET Nurse

NeuroEndocrine Cancer Australia Support Service

We offer a free, confidential telephone information and support service via our NET Nurse email and telephone line. Our NET Nurse is available to answer your questions, offer emotional support and explore practical strategies for living with NETs. The line is open Monday to Friday between 9:00am-5:00pm AEST. If you are unable to reach them, please leave a detailed message and they'll get back to you.