NeuroEndocrine Cancer Australia

Champions for early diagnosis and a cure.

COVID-19 Information and Resources

We want to take this time to reassure our community that we are set up for moving everything online and will continue to offer quality support services to our patients.

Read our update

Everything you need to know about NETs

Prevention, early diagnosis and long and short term treatment.

What are NETS?

Help us to provide support

Neuroendocrine cancers affect men, women and children of all ages. There is currently no cure. Help us provide specialised care.

Donate now

Kim’s story

I was diagnosed with a high grade Neuroendocrine Carcinoma the Friday before Christmas. My prognosis was 6 months

Read Kims story

Calling WA Residents to sign a petition to improve NET patient outcomes

NeuroEndocrine Cancer Australia supports our WA NET patients who are requesting the WA state government to recognise the many current unmet needs in patient care. Click through to download petition and help support WA Net patients.

Click Here

NETs Info

Gain access to specialised neuroendocrine information.

I am a patient

Find patient specific resources and support.

I am a HCP

Gain access to all HCP resources, articles and registries.

Get involved

Want to help improve the lives neuroendocrine patients?

Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$50

$100

$250

$500

$1,000

Provides telephone support through our specialist Net Nurse helpline.

Will help us provide online resources for patients, carers and health professionals, as well as research into quality of life issues.

Helps us facilitate over 80 peer to peer support groups around the country each year.

Allows us to organise 3 large patient education forums each year.

Allows us to help fund life changing research including the Planet Registry and patient app, control NETs, financial toxicity and nutrition in NETs.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

Support

Education

Research

Awareness

Advocacy

The facts

50%

Almost 50% of patients diagnosed report being misdiagnosed with more common diseases such as IBS or anxiety.

4,972

On average 4,972 people (2629 males and 2343 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

Patient stories

David Lockwood

I have Neuroendocrine cancer. No one should feel alone and this is my #CancerKindness story.

Kristen Leknius

After almost 5 years of misdiagnoses, Kristen was diagnosed with NETs at only 43 years of age. Kristen’s initial diagnosis was grim, thankfully a second opinion and access to PRRT treatment successfully reduced her tumour and gave Kristen a second chance at life.

News

Get up to date with the latest news and stories from NeuroEndocrine Cancer Australia and our community of supporters, patients and medical practitioners.