NeuroEndocrine Cancer Australia - formerly the Unicorn Foundation

On average 5,437 people (2,846 males and 2,591 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

%

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

NETs Info

Gain access to specialised neuroendocrine information.

I am a patient

Find patient specific resources and support.

I am a HCP

Gain access to all HCP resources, articles and registries.

Get involved

Want to help improve the lives neuroendocrine patients?

Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$50

$100

$250

$500

$1,000

Provides telephone support through our specialist Net Nurse helpline.

Will help us provide online resources for patients, carers and health professionals, as well as research into quality of life issues.

Helps us facilitate over 80 peer to peer support groups around the country each year.

Allows us to organise 3 large patient education forums each year.

Allows us to help fund life changing research including the Planet Registry and patient app, control NETs, financial toxicity and nutrition in NETs.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

Support

Education

Research

Awareness

Advocacy

Patient stories

Greg, QLD

Greg’s symptoms included tiredness, fatigue and diarrhoea.

Cathy, QLD

Cathy’s symptoms were fatigue, diarrhoea and anxiety.

Cindy, NSW

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.

Caitlin, TAS

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.

Wendy, Caloundra, QLD

Although educating healthcare professionals and the general public about the disease is too late for me. I advocate for this to happen so that no future patient has to go through what has happened to me.

Michelle, NSW

What I have learned is appropriate referral is so important. For me a partial diagnosis came 3 years after my 1st hypertensive crisis. Full diagnosis and treatment took another 4 years.

News

Get up to date with the latest news and stories from NeuroEndocrine Cancer Australia and our community of supporters, patients and medical practitioners.