NeuroEndocrine Cancer Australia
Champions for early diagnosis and a cure.
Who we are
INFO4NETs online resource is now LIVE
We are calling on our Neuroendocrine Cancer community to provide vital feedback during the trial phase.
Learn More
COVID-19 Information and Resources
We want to take this time to reassure our community that we are set up for moving everything online and will continue to offer quality support services to our patients.
Read our update
Everything you need to know about NETs
Prevention, early diagnosis and long and short term treatment.
What are NETS?
Help us to provide support
Neuroendocrine cancers affect men, women and children of all ages. There is currently no cure. Help us provide specialised care.
Donate now
Kim’s story
I was diagnosed with a high grade Neuroendocrine Carcinoma the Friday before Christmas. My prognosis was 6 months
Read Kims story

Gain access to specialised neuroendocrine information.

Find patient specific resources and support.

Gain access to all HCP resources, articles and registries.

Want to help improve the lives neuroendocrine patients?

Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$50

$100

$250

$500

$1,000

Provides telephone support through our specialist Net Nurse helpline.

Will help us provide online resources for patients, carers and health professionals, as well as research into quality of life issues.

Helps us facilitate over 80 peer to peer support groups around the country each year.

Allows us to organise 3 large patient education forums each year.

Allows us to help fund life changing research including the Planet Registry and patient app, control NETs, financial toxicity and nutrition in NETs.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

The facts

%

50%

Almost 50% of patients diagnosed report being misdiagnosed with more common diseases such as IBS or anxiety.

4,278

On average 4,278 people (2264 males and 2013 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

%

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

Patient stories

After almost 5 years of misdiagnoses, Kristen was diagnosed with NETs at only 43 years of age. Kristen’s initial diagnosis was grim, thankfully a second opinion and access to PRRT treatment successfully reduced her tumour and gave Kristen a second chance at life.
On the 8th of October 2019 I found out I was expecting my second child. Less than two weeks later I was rushed in for emergency surgery for appendicitis. Two weeks after the surgery I was diagnosed with a NET inside my removed appendix
The more I read and understood about PRRT I just kept thinking why aren’t I receiving this treatment? I have inoperable and incurable NETs so I wanted something to give me hope.
When I got diagnosed with NETs it literally flipped my world upside down. I went from doing volunteer work, playing football, working 6 days a week and playing on my cars.
I was diagnosed in 2011 at the age of 24, I can honestly say cancer had never entered my mind and it never seemed like something that could happen to me.
My diagnosis of Neuroendocrine Cancer came as a complete shock.  I had been experiencing what the doctors called non-specific symptoms

News

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Events

Learn about upcoming events hosted by NeuroEndocrine Cancer Australia and the NETs community.
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