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Patient stories are powerful, they help others, motivate us and raise awareness. We would love to hear from you.

View patient stories

Patient Stories

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Greg'

Greg, QLD

Greg’s symptoms included tiredness, fatigue and diarrhoea.
View Greg, QLD's Story
_Cathy

Cathy, QLD

Cathy’s symptoms were fatigue, diarrhoea and anxiety.
View Cathy, QLD's Story
Cindy video

Cindy, NSW

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.
View Cindy, NSW's Story
Snapchat-242229873

Caitlin, TAS

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.
View Caitlin, TAS's Story

Submit your story

You may send us your story using the form below, or by email.

We also recommend sending a photo for us to use alongside your story. It helps people connect more deeply. Landscape photos work best with our website format.

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