Patient Stories

Read more about the experiences of fellow NET patients and also check out our Patient Stories videos on Youtube.

When I got diagnosed with NETs it literally flipped my world upside down. I went from doing volunteer work, playing football, working 6 days a week and playing on my cars.
I was diagnosed in 2011 at the age of 24, I can honestly say cancer had never entered my mind and it never seemed like something that could happen to me.
My diagnosis of Neuroendocrine Cancer came as a complete shock.  I had been experiencing what the doctors called non-specific symptoms
I was diagnosed a long time ago with MEN1 which meant I was being monitored for a long time.
I was diagnosed with NETS in May 2017, a biopsy of my ovary revealed the news. It was almost a relief to know why I was experiencing the symptoms I had been…
I was diagnosed with high grade neuroendocrine carcinoma the Friday before Christmas. My prognosis was 6 months.
My role change from working life to a carer was rapid and willingly undertaken even though it was not what I had in mind for our future lives.
Although I think I’d been unwell for a while I don’t think I spent as long on the diagnosis path as some others with NETs.
It's almost two years now since I was given the diagnosis of Neuroendocrine cancer
I went from being monitored for MEN1 from the age of 12 so was used to blood tests and scans and seeing specialists but routinely rather than rushed or just told to do something without much explanation.
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