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Patient Stories

Read more about the experiences of fellow NET patients and also check out our Patient Stories videos on Youtube.

Kristen Leknius

After almost 5 years of misdiagnoses, Kristen was diagnosed with NETs at only 43 years of age. Kristen’s initial diagnosis was grim, thankfully a second opinion and access to PRRT treatment successfully reduced her tumour and gave Kristen a second chance at life.
View Kristen Leknius's Story

Demi Gough

On the 8th of October 2019 I found out I was expecting my second child. Less than two weeks later I was rushed in for emergency surgery for appendicitis. Two weeks after the surgery I was diagnosed with a NET inside my removed appendix
View Demi Gough's Story

Michael Doyle

The more I read and understood about PRRT I just kept thinking why aren’t I receiving this treatment? I have inoperable and incurable NETs so I wanted something to give me hope.
View Michael Doyle's Story

Jackie, NSW

Contact Neuroendocrine Cancer Australia – my Go-To Place for detailed, factual, accessible information about Neuroendocrine Cancer – and for information to pass on to family and to medical professionals.
View Jackie, NSW's Story

Mark Camilleri

When I got diagnosed with NETs it literally flipped my world upside down. I went from doing volunteer work, playing football, working 6 days a week and playing on my cars.
View Mark Camilleri's Story

Melissa Davis

I was diagnosed in 2011 at the age of 24, I can honestly say cancer had never entered my mind and it never seemed like something that could happen to me.
View Melissa Davis's Story

Noreen McGowan

My diagnosis of Neuroendocrine Cancer came as a complete shock.  I had been experiencing what the doctors called non-specific symptoms
View Noreen McGowan's Story

Rachel Kerney

I was diagnosed a long time ago with MEN1 which meant I was being monitored for a long time.
View Rachel Kerney's Story

Margaret Powell

I was diagnosed with NETS in May 2017, a biopsy of my ovary revealed the news. It was almost a relief to know why I was experiencing the symptoms I had been…
View Margaret Powell's Story

Kim Verlin

I was diagnosed with high grade neuroendocrine carcinoma the Friday before Christmas. My prognosis was 6 months.
View Kim Verlin's Story
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