Here are Katie
Golden's journal reflections from ENETs….
7th March
Great to see close to 700 Clinicians and Researchers who wish
to learn more and are new to NET diagnosis and therapy here today at a Post
Graduate Course…..brain overload but great to be a part of it!
8th March
Heard lots about the clinical trials around the world that
are going on or coming up, so much happening. Think we all need to make sure we
are kept informed of trials.
Information overload
but so good to see 740 people from around the world wanting to learn about
NETs. Also realising how lucky we are to have The Unicorn Foundation all around
the country and in each state. Other countries have multiple (competitive) organisations
which means patients are not all receiving the same information.
10th March
It
was great to be given the chance to go to ENETs. There were lots of scientific
talks but good to be immersed in it. Very appreciative of INCA and ENETs for
making it possible for many who went.
Simone
is now the President of INCA which is a great honour for her and the Unicorn
Foundation. It was really reassuring to see both Simone and Kate busy with many
people from all over the world, other patient support group leaders, nurses, doctors
and basically just everyone associated with NETs.
My main learnings were that there are so many
trials going on around the world, obviously some more relevant than others but
worth asking the questions to doctors and investigating to make sure we are
being considered. Plus lots of other specific learnings related to treatment
and symptoms which I know Kate will pass on when we return.
Thank you Simone and Kate and I look forward to APNETs in Melb later this year!
