Skip to content
  • About
  • Shop
  • News
  • Contact Us
Search
NECA Logo
  • NET Nurse
  • Donate
  • What are NETs?
    • What are Neuroendocrine Cancers?
    • What are Pheos & Paras?
    • NET Symptoms
    • NET Types
    • Causes
    • Treatments
    • Grades
    • Diagnosis
    • Prognosis
    Consider the Grey Area
  • Patients & Carers
    • Patient & Carer Support
    • Patient Resources
    • Optimal Care Pathway
    • NET Nurse
    • Patient Stories
    • Share your Story
    • Australian NET Specialists
    • Clinical Trials
    • Living with NETS
    • Specialist Support Services
    Consider the Grey Area
  • Healthcare Professionals
    • Optimal Care Pathway
    • Professional Learning
    • Patient Referral
    • Clinical Trials
    • NET Symptoms
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order Booklets & Resources
    Consider the Grey Area
  • Get Involved
    • Advocate for Us
    • Share your Story
    • Donate
    • Fundraise
    • Events
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Volunteer
    Senate MailChimp
  • NCD 2025
NET Nurse
Donate

Home » Advocacy » ENETs/INCA Patient Symposium March 2018

ENETs/INCA Patient Symposium March 2018

  • March 28, 2018

ENETs/INCA Patient Symposium March 2018

A Joint
Effort by NET Patient and Medical Leaders to Identify and Address Issues That
Impede Optimal Care and Research

We are so grateful to the ENETs advisory board who for the
second year supported the INCA/ENETs join patient symposium as part of the main
scientific meeting. The number of participants was a significant increase on
last year which indicated the importance of hearing from patients. The key
areas covered were addressing the “patient information gap”, how can we improve
the information that is being delivered to patients at time of diagnosis and
throughout their treatment journey, how to improve access to treatments such as
PRRT and how to involve patients in research from trial design to clinical
trials. As so clearly put by Dr Ben Lawrence ‘….we would not design a treatment
plan without consulting the patient, thus we should not design research without
including the patient…..’

Speakers and panelists included:

Prof Martyn Caplin (Royal Free Hospital UK)

Simone Leyden (INCA President)

Ron Hollander (Past President of INCA)

Teodora Kolarova (Executive Director of INCA)

Kate Wakelin (NET Nurse Unicorn Foundation Aus)

Dr Ben Lawrence (Auckland NZ)

Josh Mailman (USA)

Cathy Bouvier (NET Patient Foundation UK)

For the full program please click here and we
look forward to reporting back next year on how these issues have been
addressed.

                          

Share this post

Recent posts

Rare Cancers Roundtable

September 26, 2025

Shining a Light for World Neuroendocrine Cancer Day – Help Us Light Up Australia

September 26, 2025

Celebrating Shane Kent’s Arch2Arc Journey and Fundraising

September 20, 2025

Will Norman Nurse Webinar on Neuroendocrine Cancer

September 19, 2025
Categories
  • Advocacy
  • Awareness
  • Community Events
  • Education
  • Events
  • Fundraising
  • General
  • In The Media
  • News
  • Research
  • Unicorn Events
PrevPreviousThank you CNSA
NextWant to become a UF Patient Advocate?Next

Related Posts

PCPA Cancer Summit

  The Private Cancer Physicians of Australia (PCPA) hosted its Annual Meeting: Cancer Summit 2025 in Sydney on 13 September, bringing together clinicians, researchers, and

SCAN 2025 is now open – we need your voice

SCAN 2025 is now open – we need your voice.  As a proud member of the International Neuroendocrine Cancer Alliance (INCA), NeuroEndocrine Cancer Australia is excited

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

NeuroEndocrine Cancer Australia CEO Meredith Cummins joined a panel discussion at the Medicines Australia Horizon Scanning event, accompanied by Media and External Relations Manager Ciara

CanForum 2025: Now it’s personal: Access and equity for all

On 2nd September 2025, NeuroEndocrine Cancer Australia CEO Meredith Cummins and Media and External Relations Manager Ciara Connolly attended CanForum 2025, a leading national conference

View All

Subscribe to Newsletter

NECA Logo
registered charity badge

What are NETs

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies

Patients & Carers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

Healthcare Professionals

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
All charity donations to NeuroEndocrine Cancer Australia may be tax-deductible in Australia.

Registered Charity CFN 202607
© 2025 NeuroEndocrine Cancer Australia
  • Website by Five Creative
Twitter Facebook Youtube Instagram Linkedin