This week NECA attended the launch of Inherited Cancers Australia’s (ICA) ‘Ahead of Cancer’ at Hotel Realm in Canberra. Around 140 attended including patients with inherited variants, industry, Patient Advocacy Groups, government officials and MPs. ‘Ahead of Cancer’ is a national platform for inherited cancer prevention and earlier detection which will have five programs addressing understanding and inherited cancer risk.
These programs will include:
- The Family Tree Project – sharing family stories to spark conversations about inherited risk, testing and support
- Cancer Prevention Forum – national workshop bringing lived experience and health expertise together
- Cancer Prevention Blueprint – national roadmap turning policy & funding priorities to access prevention and support
- Inherited Cancer Awareness Day
- Beyond Risk: Data & Insights – identifying data gaps
The panel discussion by Hon Rebecca White MP Assistant Health Minister, Prof Dorothy Keefe – CEO Cancer Australia and Joe Roff former Wallabies and Brumbies player whose family carries BRCA1 pathogenic variant included government plans, Australian Cancer Plan, The National Health Genomics Policy Framework and Implementation Plan 2026-36 and then Q&A where NECA was able to highlight the fact that 10% of Neuroendocrine Cancers are inherited and that NECA is very keen to collaborate with ICA in the work they are doing.
