Advocacy is at the heart of what NeuroEndocrine Cancer Australia (NECA) does, and stories like this showcase the powerful work happening behind the scenes to support patients across Australia.
NeuroEndocrine Cancer Australia (NECA), alongside Von Hippel-Lindau (VHL) patients Amelia and Greta, expresses immense gratitude to Channel 7 for shining a spotlight on VHL and the life-changing access to Belzutifan, the only treatment available for tumours associated with this condition.
On Tuesday, 28th January, Natarsha Belling’s interview with Amelia and Greta aired nationally during the midday news segment, followed by a comprehensive online article that delved deeper into their journey and that of others diagnosed with VHL. This dual coverage has helped raise crucial awareness about VHL and the transformative impact of Belzutifan.
NECA extends heartfelt thanks to Amelia and Greta for their patience and collaboration with NECA and Channel 7 in bringing this story to life. Their courage and willingness to share their experiences have amplified the voices of many VHL patients nationwide, reflecting NECA’s commitment to advocacy and its ongoing efforts to ensure all patients have equitable access to vital treatments and support.
