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Home » Patient Stories » Chris, VIC

Chris, VIC

My Story started in January 2023 when I stared feeling really unwell. I had abdominal pain, was going to the bathroom 10 to 12 times a day, and was tired all the time.

I went to my GP and was told that I probably had a bug and was given some strong anti-biotics.

By July 2023 the symptoms were getting worse to the point I had my first Emergency Department visit where I was admitted.
I had blood tests and CT scans but again they couldn’t find anything wrong and sent me on my way.

From July 2023 to October 2023 I was admitted three more times having every test, CT, MRI scan until one Doctor  said lets do a pet scan. Oct 19th 2023 the doctor came in and said “You have pancreatic neuroendocrine cancer”

I remember leaving the hospital getting in my car and googling the cancer and then I literally called NECA.

Looking back over the last few years the symptoms were always there but life gets in the way and you dismiss them.

To say I was in shock was an understatement. I was numb. I’m 42 years old with 2 children and a wife and family, I can’t get cancer.

We discussed options and I was referred to Peter Mac Cancer Centre in Melbourne who were amazing.

In January 2024 I underwent surgery to have a Whipple procedure to remove the tumours, all up part of the pancreas, first part of the small intestine, gallbladder, bile duct and about 33 lymph nodes.

My life has changed in a dramatic way and I’ve had to make so many adjustments and have a lifetime of scans to look forward to, but I’m still here and I’ll keep fighting. Its taught me that life is short, and the big C can affect anyone at any time.

My best advice? Advocate for yourself and don’t take no for an answer if you feel something is not right.
You just never know.

Patient Stories

Dan, VIC

I know that I don’t have all the knowledge or tools in my kit to win the mental game by myself, so my family and I reach out to the amazing, experienced resources that are available at NeuroEndocrine Cancer Australia. It really helps to have someone that can validate how I am feeling or explain the processes and cycles that I will go through.

Karen, SA

My days and months have been spending time and money on and in medical appointments, tests and scans, rooms, clinics and medications and listening to profoundly specialised medical jargon, which is not always explained fully and sometimes assumed to be common knowledge,

Roxanne, ACT

The hardest thing has been actually finding out what was wrong with me. No-one could tell me for months and the toll it took on me and my family was devastating. The lack of knowledge of NETs amongst the medical fraternity amazed me. Still a long way to go.

Judy, SA

The results showed 15 tumours in my liver. Within days I had a biopsy, which confirmed it was a neuroendocrine tumour. I had never heard of this type of cancer prior to being diagnosed.

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