Genetic NETs explained

Genetic NETs explained

NETs may at times be associated with genetic syndromes, such as Multiple Endocrine Neoplasia (MEN) or Von Hippel-Lindau (VHL) disease. Genetic mutations, either inherited or acquired, play a significant role in the development and behaviour of these tumours.

Over the last two decades there has been a significant increase in the incidence of Neuroendocrine Cancers, with most of them being sporadic (not related to another disease or inherited). However, in patients with genetic conditions such as Multiple Endocrine Neoplasia (MEN), Von Hippel–Lindau (VHL) disease and neurofibromatosis (NF), there is an increased risk of developing these tumours.

Neuroendocrine cancer may at times be associated with genetic syndromes, such as Multiple Endocrine Neoplasia (MEN) or Von Hippel-Lindau (VHL) disease. Genetic mutations, either inherited or acquired, play a significant role in the development and behaviour of these tumours.

Learn about Genetic neuroendocrine cancer in this short explainer video.

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Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.