Von Hippel-Lindau (VHL) syndrome affects each person differently; therefore, surveillance and treatment plans are tailored to individual needs.
This fact sheet provides an overview of the treatment approaches available, which will depend on the type, size and location of a tumour or cyst, how it changes over time, and its impact on surrounding organs.
Not every tumour or cyst requires immediate treatment, and some can be monitored through regular surveillance.
When treatment is needed, your specialist team will discuss the potential benefits and risks of the available options to help determine the most appropriate approach for you.
