People living with neuroendocrine cancer (NETs) deserve to feel heard, respected, and supported in ways that recognise their individual cultural backgrounds, identities, values, beliefs, and diverse healthcare needs.Â
This includes ensuring that information, communication, and support are accessible, respectful, and responsive to each person’s unique circumstances.
Living with NETs can be complex, often involving delayed diagnosis, ongoing monitoring  and  long-term treatment and care.Â
Diversity
Diversity can influence how people experience and access healthcare, treatment and support services, including:Â
-        Understanding diagnosis
-        Accessing healthcare services
-        Communicating symptoms and concerns
-        Making treatment decisions
-        Engaging with healthcare professionals
-        Seeking and using support services
Recognising these differences helps improve trust, understanding, health outcomes and meeting the needs of people living with neuroendocrine cancer and their families.Â
Strategies
Strategies that may help ensure your needs are heard, respected, and understood:
- Write down questions or concerns before appointmentsÂ
- Clearly communicate symptoms, concerns, and what matters most to youÂ
- Let your healthcare team know about your cultural, spiritual, language or personal preferencesÂ
- Ask for clarification if something is unclear or confusingÂ
- Request an interpreter or communication support if neededÂ
- Bring a support person or family member to appointmentsÂ
- Ask for information to be repeated, written down, or summarised after the consultationÂ
- Let your healthcare team or support person know if you feel your needs are not being fully understoodÂ
- Request telehealth/video appointments if this improves communication and accessibilityÂ
- Confirm next steps before leaving or ending a consultation
Our commitment
At NeuroEndocrine Cancer Australia (NECA), we are committed to supporting the health and wellbeing of all people affected by neuroendocrine cancer (NETs) through respectful, inclusive, supportive and person-centred care and support. We actively seek opportunities to deepen our understanding, strengthen cultural awareness, and listen to the experiences and needs of our diverse community.Â
Our commitment includes:Â
- Creating a welcoming environmentÂ
- Listening to and connecting with our communityÂ
- Providing culturally safe servicesÂ
- Communicating with sensitivity and respect
Support Services
- NeuroEndocrine Cancer Australia – Translation Interpreter Service to access the NET Support ServicesÂ
- Aboriginal and Torres Strait Islander Optimal Care Pathway Â
Cancer Australia Optimal Care Pathway Aboriginal and Torres Strait Islander People with Cancer: Second EditionÂ
- What is cancer fact sheet (Cancer Council) - Aboriginal-and-torres-strait-islander-what-is-cancerÂ
- 13YARN – 13 92 76Â
- QLife - 1800 184 527 (National, free, confidential LGBTIQA+ phone and webchat service.)Â
- Cancer Council Booklet - LGBTQI+ People and CancerÂ
