Booklets & Guides
Explore the National Action Plan
NeuroEndocrine Cancer Australia believes advocacy is the best way forward to get greater access to optimal patient care.
Our National Action Plan has been developed in collaboration with key stakeholders, patients, the consumer advisory group, Centres of Excellence and leading Healthcare Specialists right across Australia to develop a clear strategy that we will present to the government for better neuroendocrine cancer education, treatment and support.
Now we need the help of our NETs community to call upon their local MP’s across the country and ask for their support.
One Australian is diagnosed with a neuroendocrine tumour every 90 minutes and incidence is on the rise. We need the support of the Australian government.
About the National Action Plan
The purpose of the National Action Plan is to inform stakeholders, particularly those in policy making, health and government, about the incidence of neuroendocrine cancers in Australia and their impact and cost to individuals, families, carers and the economy.
Under the guidance of Neuroendocrine Cancer Australia, the National Action Plan has been developed to establish, consolidate and expand 8 key areas of focus over the next five-year period.
- NET specialist telehealth nurses
- Information & resources
- Education of healthcare professionals (HCPs)
- National awareness campaign
- Optimal Care Pathway
- Data Registry (PLANET)
- Centres of Excellence
- Targeted research
For more information or to book your appointment, please contact our NET Nurse team today.
Booklets & Guides
National Action Plan Supplement Booklet
Other Resources
National Action Plan Flyer
Fact Sheets
5HIAA
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Treatment Options
Anatomic Distribution of Neuroendocrine Tumours
Booklets & Guides
Associated Conditions
What to say
We believe one of the best ways to get your voice heard by the government is to let your local MP know the issues people are facing in their own electorate. As your representative, it is their job to listen.
By working together, we can make a difference. With over 29,350+ Australians living with NETs the time to act is now.
From little things big things grow, and after 14 years of connecting with our community, now is the time to approach the government with one strong united voice to ensure that in the future, no patient with a neuroendocrine tumour slips through the NET.
NETs is the 7th most diagnosed cancer in Australia. NET patients across the country need the support of their government.Â
Support our National Action Plan
Please contact your local Member of Parliament and tell them why you believe they need to do more for neuroendocrine cancer patients.
You can do this by email, mail, phone – or all three! We’ve created some templates below to help get you started.
Here is a guide to get you started
- Tell them who you are and why you support the National Action Plan.
- Let them know it’s time to give neuroendocrine cancer patients the attention, funding and policy they need to improve the quality of life for patients, put policies in place to provide our Healthcare professionals with a roadmap for optimal patient care, and decrease the length of time to be diagnosed.
- Ask the Australian Government for the services we need, these services mirror those recommended by the 2024 Senate Inquiry. Funding for a NET Nurse in each state, encourage more HCPs to increase their knowledge of NETs and improve outcomes for NET patients by implementing solutions tabled in the NeuroEndocrine Cancer Australia: Preventing Australians from slipping through the NET. This was plan was launched on 10 November 2021
Other Resources
National Action Plan Sample Letter
Other Resources
National Action Plan Sample Phone Script
Fact Sheets
5HIAA
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Treatment Options
Anatomic Distribution of Neuroendocrine Tumours
Booklets & Guides
Associated Conditions
Clinical Trials
AUS-NET – Neuroendocrine Tumours
To improve patient quality of life and develop a cost-effective system that can be implemented across other rare cancers in the future.
How to contact your Federal MP
- Enter your postcode. Hit search. Your Federal member profile will appear.
- Click on Contact Information to find the MP email address, if sending by email or postal address if posting.
- Reach out to all local/state MPs in your area too.
Keep us updated
Please send a copy of your email or letter to us info@neuroendocrine.org.au or PO Box 384, Blairgowrie VIC 3942. We would also love to receive a copy of any response you may receive.
