Booklets & Guides
Living with Neuroendocrine Cancer
Living with neuroendocrine cancer often means balancing treatments, appointments, and everyday life.
NECA is here to support you with reliable information, practical tools, and strategies to help you live as well as possible.
Enrol in our "Living with NETs" Program
To further support patients and carers, our “Living with NETs” online education program is available for enrolment.
This is a free, nurse-led, self-paced resource designed to help you better understand neuroendocrine cancer, treatment options, manage side effects, and navigate life with neuroendocrine cancer.
Managing Symptoms
Each type of neuroendocrine cancer can cause different symptoms. Learn what to expect and find practical ways to manage the symptoms.
Booklets & Guides
Symptoms and Signs
Fact Sheets
Managing Diarrhoea With A Neuroendocrine Tumour
Fact Sheets
5HIAA
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Treatment Options
Anatomic Distribution of Neuroendocrine Tumours
Booklets & Guides
Associated Conditions
Treatments at a Glance
Explore the different treatments available for neuroendocrine cancer and what may be your management plan.
Diet & Nutrition Support
Access nutrition tips, resources, and personalised support from our specialist neuroendocrine cancer dietitian.
Wellness Support
Looking after your emotional wellbeing, or that of a loved one, is an important part of living well with neuroendocrine cancer.
Explore practical tools and connect with specialist support when you need it.
Support Groups
Join online or state-based in person support groups to connect with others who understand neuroendocrine cancer diagnosis.
Private Facebook Groups
Our private, moderated Facebook groups offer a flexible way to connect online with others living with neuroendocrine cancer. These groups provide peer support, shared experiences, and community connection, whether you’re newly diagnosed or further along your journey.
Helpful Resources
Booklets & Guides
Treatment
Booklets & Guides
The Guide to Best Cancer Care for Neuroendocrine Cancer
Booklets & Guides
Living with a NET
Fact Sheets
5HIAA
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Treatment Options
Anatomic Distribution of Neuroendocrine Tumours
Booklets & Guides
Associated Conditions
Patient Stories
Cassie, QLD
- Large Bowel
I’m a 36-year-old mum of three little humans – things like this just doesn’t happen to people like me. Until all of a sudden it does, and everything changes
Michael, QLD
- Small Bowel
The Emergency Department completed scans and told me I had appendicitis. When they transferred me to another hospital for surgery, the doctors noticed a small lump in my bowel and investigated further. I was told I had cancer, and no other information was provided at that time.
Chris, WA
- Small Bowel
I have worked in healthcare my entire life I had never heard of NETs until my diagnosis and I’m pretty sure none of the doctors I had seen in the lead up to diagnosis knew about it either.
What are neuroendocrine cancers?
Neuroendocrine cancer stage 4 means that the cancer has spread from where it first started to other parts of the body. This is also known as advanced or metastatic neuroendocrine cancer. To learn more about grading and staging click here.
Neuroendocrine cancer can develop anywhere in the body, but most commonly arises in the gastrointestinal tract and pancreas (around 60% of cases), followed by the lungs (approximately 20%). Click here to view different types of neuroendocrine cancers.
Neuroendocrine cancer develops from neuroendocrine cells when they undergo changes, causing them to divide uncontrollably, growing into a mass called a tumour. These neuroendocrine cells create, store and secrete a variety of hormones for normal bodily function. To learn more, watch our explainer video -Â What is the Neuroendocrine System and how do Neuroendocrine Tumours develop?
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Contact a Neuroendocrine Cancer Nurse, Dietitian, or Counsellor
We offer free, confidential information and specialist support services via our Neuroendocrine Cancer Nurse email and telephone line. Through this service, you can also schedule an appointment to receive support from our dietitian and counsellor.
