Advocate for People with Neuroendocrine Cancer

Neuroendocrine cancer is the seventh most common cancer in Australia, yet too many people still face long waits for diagnosis, limited access to specialists, and challenges navigating the health system. Advocacy helps change this. When people affected by neuroendocrine cancer, their carers, families and friends raise their voices, governments listen and take meaningful action.

Advocacy helps to:

• Draw national attention to the gaps in care and the barriers people with neuroendocrine cancer face
• Highlight the need for better pathways to diagnosis and coordinated care
• Support calls for more specialist NET nurses and services in priority areas
• Strengthen the case for fair access to scans, medicines, and clinical trials
• Encourage investment in research and improved national data
• Build understanding of neuroendocrine cancer across government and the community

Every voice makes a difference. Your support helps us push for real improvements in care and outcomes.

Your advocacy can help shape a fairer, more responsive health system. By engaging with government and the community, you can influence:

• Improved pathways to diagnosis
  Sharing your experience helps bring attention to the need for earlier detection, better access to imaging, and clearer clinical pathways.
• Better access to specialist care
  Advocacy strengthens the case for more NET nurses, multidisciplinary care, and services in areas where support is limited.
• Fair and timely access to treatment and medicines
  By raising awareness of barriers in accessing approved treatments, you help ensure people with neuroendocrine cancer are considered in policy and funding decisions.
• Investment in research and national data
  Public advocacy can highlight the importance of accurate data, research funding, and better tracking of neuroendocrine cancer incidence and outcomes.
• Greater public and government awareness
  Every story shared helps build understanding of neuroendocrine cancer and the real impact it has on individuals, families, and communities.

There are many ways to take action and support better outcomes for Australians living with neuroendocrine cancer. Whether you have a few minutes or a few hours, your contribution matters.

Ways to Advocate

• Email your local MP using our advocacy priorities and letter templates
• Share your NET story with NECA or on social media to raise awareness
• Support national campaigns like World Neuroendocrine Cancer Day each November
• Attend NECA Parliamentary Events and community advocacy activities
• Host or join local awareness initiatives such as information sessions or fundraising events

These actions help amplify the needs of the NET community across Australia.

To make advocacy easy, we provide resources that you can download and use right away.

Advocacy Resources

• MP Letter Templates ready for you to personalise and send
• Social Media Tiles to help spread awareness online
• NET Key Facts Sheet for sharing within your community or electorate
• Policy Submissions and Reports so you can stay informed about NECA’s work with government

These tools are designed to help you speak confidently and effectively about the changes needed in NET care.