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Home » Get Involved » Advocate for Us » Explore the National Action Plan

Explore the National Action Plan

NeuroEndocrine Cancer Australia believes advocacy is the best way forward to get greater access to optimal patient care. Our National Action Plan has been developed in collaboration with key stakeholders, patients, the consumer advisory group, Centres of Excellence and leading Healthcare Specialists right across Australia to develop a clear strategy that we will present to the government for better neuroendocrine cancer education, treatment and support.

Now we need the help of our NETs community to call upon their local MP’s across the country and ask for their support.

View National Action Plan
View National Action Plan Supplement
Download a flyer
Rob Hammond and MP Lara Alexander,
Rob Hammond and MP Lara Alexander,
Anita Dow, Rob Hammond, Catherine Blackwell
Anita Dow, Rob Hammond, Catherine Blackwell
Stephen McGhie, Meredith Cummins
Stephen McGhie, Meredith Cummins
Ian Elliot, Dr Joe McGirr, Meredith Cummins
Ian Elliot, Dr Joe McGirr, Meredith Cummins
Zali Steggall OAM MP, Meredith Cummins
Zali Steggall OAM MP, Meredith Cummins
Dr Sophie Scamps, Meredith Cummins
Dr Sophie Scamps, Meredith Cummins
Meredith Cummins, Gurmesh Singh, Ailsa Braid
Meredith Cummins, Gurmesh Singh, Ailsa Braid
Janie Finlay MP and NET patient Rob Hammond
Janie Finlay MP and NET patient Rob Hammond
Ailsa Braid, Pat Conaghan, Meredith Cummins
Ailsa Braid, Pat Conaghan, Meredith Cummins
Bridget Archer MP, Rob Hammond, Meredith Cummins, Adie Williams
Bridget Archer MP, Rob Hammond, Meredith Cummins, Adie Williams
Rosita Gallasch, Meredith Cummins, Adie Williams
Rosita Gallasch, Meredith Cummins, Adie Williams
Philippa Morgan, Catryna Bilyk
Philippa Morgan, Catryna Bilyk
Tim Wilson & Caroll Ann Flanigan
Tim Wilson & Caroll Ann Flanigan
Simone Leyden, Mark Butler, Lynda Dunstone
Simone Leyden, Mark Butler, Lynda Dunstone
Matt Thistlethwaite & Joyce Bonello
Matt Thistlethwaite & Joyce Bonello
Simone Leyden, Dr Katie Allen, Rod Hicks
Simone Leyden, Dr Katie Allen, Rod Hicks
Brad Hazzard, Meredith Cummins, Simone Leyden
Brad Hazzard, Meredith Cummins, Simone Leyden
Michael Doyle & Basil Zempilas
Michael Doyle & Basil Zempilas
Download a flyer
Download a flyer
James Newbury, Adie Williams
James Newbury, Adie Williams
Wendy Askew & Simone Leyden
Wendy Askew & Simone Leyden
David Smith, Member for Bean, ACT
David Smith, Member for Bean, ACT
Michael Doyle & Zaneta Mascarenhas
Michael Doyle & Zaneta Mascarenhas
Steve Irons, Kristy McSweeney & Michael Doyle
Steve Irons, Kristy McSweeney & Michael Doyle

One Australian is diagnosed with a neuroendocrine tumour every 90 minutes and incidence is on the rise. We need the support of the Australian government.

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Contact your local MP

About the National Action Plan

The purpose of the National Action Plan is to inform stakeholders, particularly those in policy making, health and government, about the incidence of neuroendocrine cancers in Australia and their impact and cost to individuals, families, carers and the economy.

Under the guidance of Neuroendocrine Cancer Australia, the National Action Plan has been developed to establish, consolidate and expand 8 key areas of focus over the next five-year period.

View National Action Plan
View The Facts

What to say

We believe one of the best ways to get your voice heard by the government is to let your local MP know the issues people are facing in their own electorate. As your representative, it is their job to listen. 

By working together, we can make a difference. With over 29,350+ Australians living with NETs the time to act is now.

From little things big things grow, and after 14 years of connecting with our community, now is the time to approach the government with one strong united voice to ensure that in the future, no patient with a neuroendocrine tumour slips through the NET.

Support our National Action Plan

NETs is  the 7th most diagnosed cancer in Australia. NET patients across the country need the support of their government. 

Please contact your local Member of Parliament and tell them why you believe they need to do more for neuroendocrine cancer patients.

You can do this by email, mail, phone – or all three! We’ve created some templates below to help get you started.

Here is a guide to get you started

  1. Tell them who you are and why you support the National Action Plan.
  2. Let them know it’s time to give neuroendocrine cancer patients the attention, funding and policy they need to improve the quality of life for patients, put policies in place to provide our Healthcare professionals with a roadmap for optimal patient care, and decrease the length of time to be diagnosed.
  3. Ask the Australian Government for the services we need, these services mirror those recommended by the 2024 Senate Inquiry. Funding for a NET Nurse in each state, encourage more HCPs to increase their knowledge of NETs and improve outcomes for NET patients by implementing solutions tabled in the NeuroEndocrine Cancer Australia: Preventing Australians from slipping through the NET.  This was plan was launched on 10 November 2021
Download a sample letter
Download a sample phone script

How to contact your Federal MP

Find your federal MP
  • Enter your postcode. Hit search. Your Federal member profile will appear.
  • Click on Contact Information to find the MP email address, if sending by email or postal address if posting.
  • Reach out to all local/state MPs in your area too.

Keep us updated

Please send a copy of your email or letter to us info@neuroendocrine.org.au or PO Box 384, Blairgowrie VIC 3942. We would also love to receive a copy of any response you may receive.
Download Action Plan
Download Flyer
Download Fact Sheet

Our Consumer Advisory Group

Our Consumer Advisory Group are here to help should you have any questions. Click the member for your state for assistance. 

jacqueline crop
NSW

Jacqueline Gillespie

Email
Sharon rickard Sunnies landscape
VIC

Sharon Rickard

Email
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SA & NT

Alison Danis

Email
Lynda-Dunstone-2018
ACT

Lynda Dunstone

Email
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QLD

Amanda Stork

Email
Therese Townsend crop
QLD

Therese Townsend

Email
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NSW

David Lockwood

Email

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