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Home » National Patient Awareness

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Neuroendocrine cancer frequently camouflages itself.

Its vague symptoms can be misdiagnosed with conditions like IBS, Asthma, or Menopause.

Neuroendocrine Tumours (NETs) can affect men and women of all ages, races and ethnicities.

Consider the grey area, know the symptoms, and speak to your GP today.

Learn More
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Neuroendocrine Cancer Symptoms

Do you, or does someone you know have these symptoms?

Flushing

The skin on your face and upper chest feels hot and changes colour

Wheezing

Asthma-like signs and symptoms, such as wheezing and shortness of breath

Palpitations

A racing heartbeat (palpitations), sometimes combined with dizziness

Diarrhoea

Your bowel motions are regularly urgent, watery, and frequent with no known cause

Fatigue

Overwhelming exhaustion that cannot be overcome with a good night's rest

Rashes

A red rash with swelling and blisters that often travels from place to place on the skin

Read The Facts
Neuroendocrine tumours (NETs) can develop in many parts of the body. Depending on where the tumour is located will determine the symptoms a patient experiences. Not all neuroendocrine cancer patients experience symptoms prior to diagnosis and not all people experiencing the symptoms listed above will have neuroendocrine cancer. If you are experiencing any of these symptoms we strongly recommend you speak to your healthcare professional.

Jamie’s Story

“My symptoms were like a lot of peoples, there was diarrhoea, just a general feeling of unwell… and on top of that I was pregnant." Jamie Kernaghan

Stories similar to Jamie’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.

Read Jamie's Story
View Other Stories

Jamie's Story

“My symptoms were like a lot of peoples, there was diarrhoea, just a general feeling of unwell… and on top of that I was pregnant. I could feel sick for a couple of weeks and then I'd be fine for a few months.”
- Jamie Kernaghan
Stories similar to Jamie’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Jamie's Story
View Other Stories

Brad's Story

“4-6 months prior to diagnosis I was really losing a lot of weight.”
- Brad Webb
Stories similar to Brad’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Brad's Story
View Other Stories

Sandi's Story

"Being told you have an incurable cancer is a big moment to process… My symptoms were quite acute and they had a very sudden onset. Abdominal pain, cramping, vomiting, sweating.”
- Sandi Smyth
Stories similar to Sandi’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Sandi's Story
View Other Stories

Brad's Story

“I went and got the diagnosis alone. Probably not a good idea. You hear the first words, ‘You've got cancer’ and then you don't hear another word after that.”
- Brad McKenzie
Stories similar to Brad’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Brad's Story
View Other Stories

Mel's Story

“They found a tumour about the size of a tennis ball on my pancreas… It’s a shame that it takes a diagnosis like this to change the way people live their life.”
- Mel Taylor
Stories similar to Mel’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Mel's Story
View Other Stories

Suzie's Story

“Looking back, I had lower right pain (in my body) for two years prior… I just knew something didn’t add up”.
- Suzie Nigro
Stories similar to Suzie’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Suzie's Story
View Other Stories

Jacqueline's Story

“To take control of the things I could control, and let go of the things I can’t control. . . I think I am more balanced in my life now, which is better for my overall health.”
- Jacqueline Gillespie
Stories similar to Jacqueline’s are common. With vague symptoms, many NET patients can wait over 5 years before receiving a correct diagnosis.
Read Jacqueline's Story
View Other Stories

The Facts

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

1 Australian is diagnosed with a Neuroendocrine Tumour every 90 minutes

The average Australian waits over 5 years for a correct diagnosis

Neuroendocrine Cancer is Australia’s 7th most commonly diagnosed cancer

5,550+

Australians are diagnosed with neuroendocrine tumours each year

25,550+

Australians are currently living with neuroendocrine cancer

1 in 55

Australians have a chance of developing a NET

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