Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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The loss of a true patient champion

INCA Patient Summit – Plovdiv Bulgaria

UF – Consumer Advisory Group (CAG)

“Let’s Talk About NETs” this World NET Cancer Day Nov 10

Unicorn Foundation – Japan HTAi 2016

Want to become a UF Patient Advocate?

Help us improve our Support Groups

Senate Inquiry Report and Recommendations

Federal Health Department Grant

Unicorn Foundation Speaks at Senate Inquiry

UF heads to Clinical Oncology Society of Australia Annual Conference

2015 INCA Patient Summit

Raising awareness in Canberra

NET Nurse Petition Update

Lutate access in NSW

Petition for NET Nurse Funding

Our NET Nurses are here to help support you from diagnosis to treatment, and living well with NETs.

Free and confidential, our NET nurses are available Monday – Friday, 9am – 5pm (AEDT).