The 12th INCA Global NET Cancer Advocate Summit was held in Segovia Spain 9 -10 September 2024. The Summit saw representatives from 25 member organisations from around the world and was attended by INCA Research Committee Chair and NeuroEndocrine Cancer Australia CEO, Meredith Cummins (pictured).
For each of the INCA Pillars there were member showcase presentations highlighting the “Best Practices and challenges” and then breakout groups to further discuss plans for INCA and address issues. The Awareness Pillar then had a session on Raising Awareness Globally – Dr Rocio Garcia-Carbonero (ENETs Chair) spoke about “ Working in synergy with ENETs to improve Understanding of NETs”.
In the afternoon there was a Best Practices and challenges in working with the Medical Community. NECA was invited to present our HCP Education modules and deliver our successes and lessons learned.
On day 2 Best Practices and challenges in partnering in NET Research. NECA showcased the research it is involved in and also provide information about being included in research and working with Researchers and clinicians.
After this Dr Thorvardur Halfdanarson (NANETs President) presented “Meaningful Involvement of Patients in NET Research”. The afternoon session discussed NET Cancer Day 2024.
Following this the focus was on Best Practices and challenges in evidence based advocacy. The final 2 presentations were “Advocacy in the NEC Community” by Susan Meckler Plummer and “Data Collection and publication – a how to guide” by Prof John Ramage (Kings Health Partners NET Centre).
The Summit was a wonderful event for networking and collaborating, learning from and educating each other! Read the full INCA summary here
