Kristen, VIC

NET Type:

Pancreatic

After almost 5 years of misdiagnoses, Kristen was diagnosed with NETs at only 43 years of age. Kristen’s initial diagnosis was grim, thankfully a second opinion and access to PRRT treatment successfully reduced her tumour and gave Kristen a second chance at life.

And Kristen’s Channel 7 News interview here:

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More patients diagnosed with Pancreatic

Janice, TAS

Pancreatic

Multiple doctors had turned down my requests over the years for an abdominal scan. Instead, I was simply given more and more drugs to treat the symptoms that I was experiencing, thereby masking the cause of the symptoms.

Jessica, WA

GEP-NET
Pancreatic

Living in Kalgoorlie meant I needed to travel to Perth for further testing and specialist care. I underwent brushings to help confirm the diagnosis and had stents placed in my pancreas and bile duct, as both were not functioning well. When the brushings were unable to provide a clear diagnosis, a biopsy was performed to officially confirm the NET.

Jo, QLD

Pancreatic

In that moment, everything just crumbled. One minute, I was thinking I’d be home in a day or two. The next, I was being told I had stage-four, inoperable cancer.

Terri, VIC

Pancreatic

I know that if there was more understanding of the disease and its effects my experience wouldn’t have been so isolating. The lack of knowledge within the medical profession was really shocking to me, as was the lack of information and support offered after diagnosis.