Suzie, NSW

Name: Suzie Nigro

NET Type:

  • Small Bowel
“Looking back, I had lower right pain (in my body) for two years prior… I just knew something didn’t add up”.
- Suzie Nigro

53-year-old Suzie, became intimately acquainted with the challenges of neuroendocrine cancer when diagnosed nearly six years ago.

For two years before diagnosis Suzie experienced lower right pain. Eventually, the pain intensified, prompting a visit to the GP, who wisely suggested a CT scan. The results revealed a distressing possibility of metastases, echoing memories of losing her father to cancer years prior.

Suzie’s sister, Jennifer has played a crucial role in this tumultuous journey. Together, they have navigated the shock of cancer and the subsequent quest for information.

“If she’s in it, then I’m in it.”

Both were deeply affected by their father’s previous cancer battle and turned to the internet for answers when the diagnosis was first received. Jen stumbled upon the Unicorn Foundation (now NeuroEndocrine Cancer Australia – NECA) and the NET nurse helpline.

“They’ve been a lifesaver.” 

Inspired by Suzie’s diagnosis, Jennifer has become a NECA volunteer, driven by a mission to raise awareness about neuroendocrine cancer, particularly among some healthcare professionals.

“People need to know what neuroendocrine cancer is.”

Jen’s devotion to her sister throughout Suzie’s NET diagnosis has been unwavering. From accompanying her during PET scans to demonstrating solidarity by staying in the room despite radiation concerns, Jen’s commitment is resolute.

“If she’s having the scan, I’m having the scan.”

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More patients diagnosed with Small Bowel

Denise, NSW

  • Small Bowel
When the histopathology returned six days post-surgery, everything made sense. A slow-growing cancer: Carcinoid, or Neuroendocrine Tumour, a term only just coming into use at that time. My feelings? Overwhelmingly, relief. Validated after two and a half years of being dismissed. Some anger, too, but mostly relief to finally have a diagnosis I could understand and act on.

Nat, SA

  • Small Bowel
Before I was diagnosed, I had ongoing medical issues including bowel obstructions and endometriosis, which made it easy to dismiss my symptoms. But I started experiencing rashes across my chest, hot flushes, shortness of breath and heart palpitations. Something did not feel right.

Allison, W.A.

  • Small Bowel
This experience has made me a firm believer in screening, early diagnosis, and specialist NET care. I feel incredibly lucky — and grateful — that my NET was found at such an early, treatable stage.

Patricia, NSW

  • Small Bowel
There’s such little awareness about this cancer, even among medical professionals. I’ve had GPs say to me, “I’ve never seen a neuroendocrine cancer patient in my life.” And I tell them, “You probably have — you just didn’t diagnose them.”

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