Suzie's Story
“Looking back, I had lower right pain (in my body) for two years prior… I just knew something didn’t add up”.
- Suzie Nigro
Neuroendocrine cancer frequently camouflages itself.
Its vague symptoms can be misdiagnosed with conditions like IBS, Abdominal Pain, Asthma, or Menopause.
53-year-old Suzie, became intimately acquainted with the challenges of neuroendocrine cancer when diagnosed nearly six years ago.
For two years before diagnosis Suzie experienced lower right pain. Eventually, the pain intensified, prompting a visit to the GP, who wisely suggested a CT scan. The results revealed a distressing possibility of metastases, echoing memories of losing her father to cancer years prior.
Suzie’s sister, Jennifer has played a crucial role in this tumultuous journey. Together, they have navigated the shock of cancer and the subsequent quest for information.
“If she’s in it, then I’m in it.”
Both were deeply affected by their father’s previous cancer battle and turned to the internet for answers when the diagnosis was first received. Jen stumbled upon the Unicorn Foundation (now NeuroEndocrine Cancer Australia – NECA) and the NET nurse helpline.
“They’ve been a lifesaver.”
Inspired by Suzie’s diagnosis, Jennifer has become a NECA volunteer, driven by a mission to raise awareness about neuroendocrine cancer, particularly among some healthcare professionals.
“People need to know what neuroendocrine cancer is.”
Jen’s devotion to her sister throughout Suzie’s NET diagnosis has been unwavering. From accompanying her during PET scans to demonstrating solidarity by staying in the room despite radiation concerns, Jen’s commitment is resolute.
“If she’s having the scan, I’m having the scan.”
Neuroendocrine Cancer Symptoms
Do you, or does someone you know have these symptoms?
Flushing
The skin on your face and upper chest feels hot and changes colour
Wheezing
Asthma-like signs and symptoms, such as wheezing and shortness of breath
Palpitations
A racing heartbeat (palpitations), sometimes combined with dizziness
Diarrhoea
Your bowel motions are regularly urgent, watery, and frequent with no known cause
Fatigue
Overwhelming exhaustion that cannot be overcome with a good night's rest
Rashes
A red rash with swelling and blisters that often travels from place to place on the skin
Neuroendocrine tumours (NETs) can develop in many parts of the body. Depending on where the tumour is located will determine the symptoms a patient experiences. Not all neuroendocrine cancer patients experience symptoms prior to diagnosis and not all people experiencing the symptoms listed above will have neuroendocrine cancer. If you are experiencing any of these symptoms we strongly recommend you speak to your healthcare professional.
All charity donations to NeuroEndocrine Cancer Australia may be tax-deductible in Australia.