Patient Support Groups

 

The Unicorn Foundation has established patient support groups across Australia, as well as an active Facebook Private Discussion Group and linkages to Cancer Council Telephone Support Groups

Being diagnosed with cancer can be a scary and confronting experience. Being diagnosed with Neuroendocrine or Carcinoid cancer is even more confusing and daunting due to the lack of information and resources readily available. Therefore one of the main aims of the Unicorn Foundation is to provide support to patients by bringing them together in a relaxed yet informative environment.

Find a Support Group 

Click on the relevant state on the map of Australia to locate your closest support group. If you are interested in joining our Facebook group, or would like to assist in organizing or facilitating a patient support group, then please contact us at netnurse@neuroendocrine.org.au.

Click here to find out more about Telephone Support Groups for those with Advanced Cancer and for Carers.

New South Wales and ACT

North Shore Private Hospital 

Location
North Shore Private Hospital
Ground Floor Conference Room
Westbourne Street
St Leonards

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times – 2018  (Download Royal North Shore flyer here)
Wednesday 14th February, 5pm – 7pm
Wednesday 11th April, 5pm – 7pm
Wednesday 13th June, 5pm – 7pm
* Wednesday 1st August, cancelled in lieu of Sydney Vital event on 9th August (registration details here)
Wednesday 10th October, 5pm – 7pm
Wednesday 12th December, 5pm – 7pm

Sydney Adventist Hospital (SAN)

 

Location
Cancer Support Centre
Jacaranda Lodge
SAN -185 Fox Valley Rd, Wahroonga NSW 2076

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download NSW SAN flyer here)
Thursday 15th March, 1.30pm – 3pm
Thursday 17th May, 1.30pm – 3pm
Thursday 19th July, 1.30pm – 3pm
Thursday 20th September, 1.30 – 3pm
Thursday 15th November, 1.30 – 3pm

St George Hospital

Location
St George Hospital
Ground Floor
Research and Education Centre
South Street
Kogarah
(just beside the car park)

Contact
NET Nurse 
T 1300 CURE NETS (1300 287 363) 
E  netnurse@neuroendocrine.org.au

Dates/Times – 2018 (Download St George flyer here) 

Thursday 12th April, 2pm – 4pm
Thursday 14th June, 2pm – 4pm
* Thursday 9th August, 2pm – 4pm, cancelled in lieu of Sydney Vital event on 9th August (registration details here)
Thursday 11th October, 2pm – 4pm
Thursday 6th December, 2pm – 4pm

Coffs Harbour

 

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download Coffs Harbour flyer here)
Wednesday 14th February, 1pm – 3pm
Wednesday 11th April, 1pm – 3pm
Wednesday 13th June, 1pm – 3pm
Wednesday 8th August, 1pm – 3pm
Wednesday 10th October, 1pm – 3pm
Wednesday 12th December, 1pm – 3pm

Canberra 

 

The Raiders Club,

1 Liardet Street,

Weston, ACT

Contact
NET Nurse 

 T 1300 CURE NETS (1300 287 363) 

 E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download ACT flyer here)
Friday 16th February, 10am-12pm
Friday 9th March, 10am – 12pm
Friday 27th April, 10am – 12pm
Friday 25th May, 10am – 12pm
Friday 22nd June, 10am – 12pm
Friday 20th July, 10am – 12pm
Friday 17th August, 10am – 12pm
Friday 21st September, 10am – 12pm
Friday 26th October, 10am – 12pm
Friday 23rd November, 10am – 12pm
Friday 14th December, 10am – 12pm

Victoria

Kew (Melbourne) 

Location
Phyllis Hore Room
Kew Library
Corner Cotham Road and Civic Drive
Kew

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download VIC flyer here)
Tuesday 20th February, 5.30pm – 7.30pm
Tuesday 17th April, 5.30pm – 7.30pm
Wednesday 6th June, 5.30pm – 7.30pm (Note change to Wednesday)
Tuesday 28th August, 5.30pm – 7.30pm
Tuesday 9th October, 5.30pm – 7.30pm
Tuesday 27th November, 5.30pm – 7.30pm

Queensland

Fortitude Valley (Brisbane) 

Location
Cancer Council QLD
Auditorium
553 Gregory Terrace
Fortitude Valley

Contact
NET Nurse 
T 1300 CURE NETS (1300 287 363) 
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 
Tuesday 6th February, 2pm – 5pm
Tuesday 24th April, 2pm – 5pm
Wednesday 20th June, 2pm – 5pm (Please note change to a Wednesday this time)
Tuesday 28th August, 11am – 2pm
Tuesday 9th October, 11am – 2pm
Tuesday 4th December, 11am – 2pm

Gold Coast

Location
Cancer Council QLD
1 Short Street
Southport

Contact
NET Nurse 
T 1300 CURE NETS (1300 287 363) 
E  netnurse@neuroendocrine.org.au

Dates/Times 2018
Friday 3rd August, 12.30pm – 2.30pm
Friday 5th October, 12.30pm – 2.30pm
Friday 30th November, 12.30pm – 2.30pm

South Australia

Eastwood (Adelaide) 

Location
Cancer Council Australia
202 Greenhill Road
Eastwood

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)  
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download SA flyer here)
Tuesday 6th February, 3pm – 5pm
Tuesday 10th April, 3pm – 5pm  – Guest speakers Kate Wakelin (Unicorn Foundation NET Nurse), Jessica Mercurio (SA NET Nurse), Gabby Cehic (Head Nuclear Medicine QEH)
Tuesday 5th June, 3pm – 5pm
Tuesday 7th August, 3pm – 5pm
Tuesday 2nd October, 3pm – 5pm
Tuesday 4th December 3pm – 5pm

Tasmania

Southern Tasmanian Neuroendocrine Tumour Support Group 

Location
Cancer Council
15 Princes St
Sandy Bay

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)  
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download Hobart flyer here)
Tuesday 13th February, 1.30pm – 3.30pm
Tuesday 10th April, 1.30pm – 3.30pm
Tuesday 12th June, 1.30pm – 3.30pm
Tuesday 14th August, 1.30pm – 3.30pm
Tuesday 9th October, 1.30pm – 3.30pm
Tuesday 11th December, 1.30pm – 3.30pm

The Northern Tasmania NET Support Group 

Location
Launceston Cancer Support Centre (Cancer Council TAS)
69 – 71 Howick Street
Launceston

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)  
E  netnurse@neuroendocrine.org.au

Dates/Times 2018 (Download Launceston flyer here)
Wednesday 28th February, 1pm – 2.30pm – CANCELLED (Due to Launceston Cup Day!)
Wednesday 28th March, 1pm – 2.30pm
Wednesday 25th April, 1pm – 2.30pm
Wednesday 30th May, 1pm – 2.30pm
Wednesday 25th July, 1pm – 2.30pm
Wednesday 29th August, 1pm – 2.30pm
Wednesday 26th September, 1pm – 2.30pm
Wednesday 31st October, 1pm – 2.30pm
Wednesday 28th November, 1pm – 2.30pm

Western Australia

Murdoch (WA) 

 

Please note this new location:
Meeting Room G7
Education Building
Fiona Stanley Hospital

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E netnurse@neuroendocrine.org.au  

Dates/Times 2018 (Download WA flyer here)  
Wednesday 7th February, 6pm – 8pm
Wednesday 6th June, 6pm – 8pm
Wednesday 1st August, 6pm – 8pm
Wednesday 14th November, 6pm – 8pm

Telephone Support Groups

Telephone Support Groups are held twice a month (details below). Referrals or direct enquiries can be made by calling 1300 755 632 or by emailing: tsg@nswcc.org.au Name and phone number are required to access this service.

Advanced Cancer TSG
This group is suitable for people with any cancer type that has moved into other organs or areas of the body and is diagnosed as ‘Advanced’, ‘Terminal’ or ‘Metastasised’. For people with NETs, this group may be helpful when their tumours are no longer responding to treatment (as people with ‘Advanced’ NETs can be stable for many years)

Carers TSG
This group is suitable for the primary carer of someone with cancer. The diagnosis can be of any cancer type and the relationship of the carer to the patient could be partner, spouse, parent or (adult) child.