Overview
This week we were very happy to be joined by guest expert Dr John Leyden AM. John is known to many of us as the co-founder of NeuroEndocrine Cancer Australia (along with his sister, Simone), and is also a cardiac anaesthesiologist, specialising in the management of carcinoid crisis. We asked John to join us today to talk about allergies, anaphylaxis, adrenaline and carcinoid syndrome/carcinoid crisis.
Some of the areas discussed included:
What is anaphylaxis?
The management of anaphylaxis with adrenaline, when someone has NETs
Decision making and timing around the COVID-19 vaccinations for people with NETs
The importance of being your own advocate
The importance of managing anxiety
Useful links:
COVID Cancer Council FAQs: https://tinyurl.com/59mhpvy6
Australian Government COVID info: https://www.health.gov.au/initiatives-and-programs/covid-19-vaccines
Facebook Friday interview about COVID with A/Prof Patrick Charles: https://youtu.be/Jp05RIwlgb0
NeuroEndocrine Cancer Australia webinar on Anaesthetics and NETs: https://youtu.be/Lg-4ovZjpPY
Carcinoid Crisis and Anaesthesia factsheet: https://neuroendocrine.org.au/n5058-neca_carcinoid-crisis-and-anaesthesia-factsheet_download-v1/
Carcinoid syndrome bathroom card: https://neuroendocrine.org.au/wp-content/uploads/2020/06/N5058-NECA_Bathroom-Card-v1.pdf
Carcinoid Crisis Medical Alert card: https://neuroendocrine.org.au/wp-content/uploads/2020/06/N5058-NECA_Carcinoid-Medical-Card-v1.pdf
Food and symptom diary: https://neuroendocrine.org.au/wp-content/uploads/2020/06/N5058-NECA_NETs-Food-Symptom-Diary-v1.pdf
Cancer Connect, call for volunteers – please contact Kate (details below)
Support Groups survey – many thanks to everyone who has done this, just a few days remaining for any last-minute stragglers: https://www.surveymonkey.com/r/S7L3BLQ
To contact Kate Wakelin (NET Nurse), email NETNurse@neuroendocrine.org.au or call 1300 287 363.
This video was originally broadcast into our Facebook Private Discussion Group. If you are affected by NETs (either as a patient or carer) and in Australia, you’re welcome to join this group – www.facebook.com/groups/472805285594/ (once you click on “Join Group”, you will be guided to answer three questions, so we can approve your membership). Our Carers group is at www.facebook.com/groups/797093257354706
Please note that the information provided in this video is general, and not intended to be a substitute for professional advice. Always seek the guidance of your doctor or other qualified professional with any questions you may have regarding your own health or a medical concern.
