Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Fact Sheets

Carcinoid Crisis and Anaesthesia

Fact Sheets

Carcinoid Heart Disease

Fact Sheets

Carcinoid Syndrome

Educational Videos

Cardiac Issues in NETs – Dr Daniel Cehic

Facebook Support Groups

Carers Private FB Support Group

Causes & Risk Factors

Cellular Mutations in Neuroendocrine Cancer

Getting Diagnosed

Challenges in Diagnosing Rare Neuroendocrine Tumours

Treatment Options

Chemotherapy for Neuroendocrine Tumours

Symptoms

Chronic Inflammation and Neuroendocrine Cancer

Fact Sheets

Clinical Trials

Getting Diagnosed

Common Sites of Neuroendocrine Tumour Occurrence

Wellness

Complementary Therapies

Fact Sheets

Complementary Therapies

Clinical Trials

Compose GEP-NET Phase III Trial

A phase III clinical trial investigating a new treatment option for advanced neuroendocrine tumors of gastroenteric or pancreatic origin (GEP-NETs)
Treatment Options

Creon Medication

Getting Diagnosed

Diagnosing Phaeochromocytomas and Paragangliomas (PPGLs)

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.