Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Educational Videos

Brisbane NET Forum 2019 Hereditary Syndromes AMANDA LOVE

Forum Videos

Brisbane NET Patient Forum 2024

Support Groups

Cancer Council Telephone Support Group

Fact Sheets

Carcinoid Crisis

Fact Sheets

Carcinoid Crisis and Anaesthesia

Fact Sheets

Carcinoid Heart Disease

Fact Sheets

Carcinoid Syndrome

Educational Videos

Cardiac Issues in NETs – Dr Daniel Cehic

Facebook Support Groups

Carers Private FB Support Group

Causes & Risk Factors

Cellular Mutations in Neuroendocrine Cancer

Getting Diagnosed

Challenges in Diagnosing Rare Neuroendocrine Tumours

Treatment Options

Chemotherapy for Neuroendocrine Tumours

Symptoms

Chronic Inflammation and Neuroendocrine Cancer

Fact Sheets

Clinical Trials

Getting Diagnosed

Common Sites of Neuroendocrine Tumour Occurrence

Wellness

Complementary Therapies

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.