Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Fact Sheets

Diagnosing Phaeochromocytomas and Paragangliomas (PPGLs)

Booklets & Guides

Diagnosis

Getting Diagnosed

Diagnostic Imaging Techniques for Neuroendocrine Tumours

Booklets & Guides
Getting Diagnosed

Differential Diagnosis of NETs

Getting Diagnosed

Dotatate Scan Neuroendocrine Tumour

Treatment Options

Emerging Immunotherapies for NETs

Symptoms

Emotional and Psychological Impact of NET Symptoms

Wellness

Employment and Cancer

Getting Diagnosed

Endoscopic Procedures for Diagnosing Gastrointestinal NETs

Fact Sheets

Exercise The Facts

Educational Videos

Facebook Friday – 20/8/2021 Advanced care planning

Educational Videos

Facebook Friday – 27/11/2020 – Meredith Cummins, Let’s talk about educating our GPs about NETs!

Educational Videos

Facebook Friday – Let’s talk about Palliative Care with Dr Sonia Fullerton

Educational Videos

Facebook Friday – Let’s talk about surgery with Prof Jas Samra

Educational Videos

Facebook Friday 05/06/2020 – Somatostatin Analogues

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.