Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Fact Sheets

Para & Phaeo Factsheet

Wellness

Parenting through Cancer

Clinical Trials

PARP Inhibitor With 177Lu-DOTA-Octreotate PRRT in Patients With Neuroendocrine Tumours (PARLuNET)

PARLuNET is a phase 1 dose-escalation study designed to evaluate the safety and tolerability of talazoparib (PARP Inhibitor) in...
Other Resources

Patient Card – Bathroom

Other Resources

Patient Card – Medical Alert

Educational Videos, Explainer Videos

Peptide receptor radionuclide therapy (PRRT)

Clinical Trials

Phase 3 Trial of CAM2029 vs Standard Treatments in GEP-NET Patients

The purpose of this study is to compare the effectiveness and safety of CAM2029 to octreotide LAR or lanreotide ATG in patients with advanced, well-differentiated GEP-NET.
Causes & Risk Factors

Potential Carcinogens and Neuroendocrine Tumour Risk

Wellness

Preparing for the holiday season

Prognosis

Prognosis in Rare and Aggressive Neuroendocrine Cancers

Prognosis

Prognostic Significance of Tumour Grade in NETs

Fact Sheets
Treatment Options

PRRT Treatment

Fact Sheets

Psychological Tips and Mental Health

Fact Sheets

Questions to Ask

Educational Videos

Questions to ask your Doctor

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.