Booklets & Guides
Patient Resources
Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.
Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.
These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.
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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.
Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.
Treatment Options
New Medicare item for PRRT (Lu-DOTA) added from 1 November 2025
Support Groups
NSW & ACT Support Groups
Educational Videos
Nutrition and NETs Webinar – the latest research
Booklets & Guides
Nutrition and Neuroendocrine Tumours
Clinical Trials
ONJCRI Immunotherapy Trial: Nivolumab & Ipilimumab for Rare and Advanced Cancers
This protocol provides an important opportunity to establish whether the combination of nivolumab & ipilimumab has efficacy in these cancers.
Support Groups
Online Support Groups
Educational Videos
Optimal Care Pathway for Neuroendocrine Tumours (NETs)
Fact Sheets
Palliative Care & End of Life Care Resource List
Fact Sheets
Para & Phaeo Factsheet
Wellness
Parenting through Cancer
Clinical Trials
PARP Inhibitor With 177Lu-DOTA-Octreotate PRRT in Patients With Neuroendocrine Tumours (PARLuNET)
PARLuNET is a phase 1 dose-escalation study designed to evaluate the safety and tolerability of talazoparib (PARP Inhibitor) in...
Other Resources
Patient Card – Bathroom
Other Resources
Patient Card – Carcinoid Crisis Medical Alert
Educational Videos, Explainer Videos
Peptide receptor radionuclide therapy (PRRT)
Forum Videos
