The INCA Research Committee (Chaired by our CEO, Simone Leyden) is pleased to announce the launch of their inaugural INCA Research Advocate Bootcamp.
Bringing together passionate NET patient advocates from around the globe, the online training modules designed by delivery partners, Patvocates, take participants through the many facets of research including drug development, statistics and why they matter, PROMS (Patient Reported Outcome Measurements) and QOLs (Quality of Life) and evidence based patient advocacy.
We are so proud of the 18 participants and know that they will take what they have learnt and put it into practice in their own countries.
We wish our class of 2020 all the best, this includes two of our NECA CAG members Katie Golden (NSW) and Amanda Stork (QLD) and special thanks to Prof Rod Hicks (NECA Board Member) who was a guest presenter in the second session.
“One of the core pillars of INCA is NET Research. This can come in a variety of ways; through education of what research is to our patient community, encouraging unique and practice changing trials with our medical professionals and industry partners or helping to promote active trials for recruitment. We all know how important an increase in quality research will be to our goal, of earlier diagnosis and ultimately a cure of our global NET community.”
To read more head to: https://incalliance.org/inca-boot-camp-for-research-advocates-july-session/
