Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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AUS-NET Update, January 2026

NECA attends Professionals Uplifting Patient Partnership (PUPP)’s final event of the year

NECA attends ACNNP Governance Group Day

Equitable Access to Cancer Care: Reflections from Parliament House

Patient and Consumer Roundtable on Comparator Selection in HTA

NECA Highlights Gaps in Government’s Senate Inquiry Response

SCAN 2025 is now open – we need your voice

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

CanForum 2025: Now it’s personal: Access and equity for all

National Patient Organisation Network (NPON)

Radio National Interview: Changing Australia June 2025

Neuroendocrine Cancer Day

Neuroendocrine Cancer Day is on 10 November, and every bit of support counts.

Create an event, share your artwork, or donate on our ‘Double Your Impact’ days. There are so many ways to stand with the NET community.