Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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Equitable Access to Cancer Care: Reflections from Parliament House

Patient and Consumer Roundtable on Comparator Selection in HTA

NECA Highlights Gaps in Government’s Senate Inquiry Response

PCPA Cancer Summit

SCAN 2025 is now open – we need your voice

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

CanForum 2025: Now it’s personal: Access and equity for all

National Patient Organisation Network (NPON)

ACCN Innovations Showcase 2025

Radio National Interview: Changing Australia June 2025

Adelaide NET Patient Forum 2025

CNSA & ICCN 2025 Congress: Global Voices, Local Actions

Announcing our First Patient Ambassador – Cassie Miller

Bringing Together Experts to Improve NET Patient Care: NECA at the 5th NET Preceptorship

2025 Impact Report

Be the Voice for NET Patients in WA – Join Our CAG Team

Tax Appeal

Screenshot 2026-05-20 at 2.12.07 PM

Help 31,000+ neuroendocrine cancer patients get the specialised care they deserve.

Every dollar raised is fully tax deductible and helps fund much needed advocacy efforts and patient support.