Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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NECA attends ACNNP Governance Group Day

Nuclear Medicine Round Table

Equitable Access to Cancer Care: Reflections from Parliament House

Patient and Consumer Roundtable on Comparator Selection in HTA

NECA Highlights Gaps in Government’s Senate Inquiry Response

PCPA Cancer Summit

SCAN 2025 is now open – we need your voice

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

CanForum 2025: Now it’s personal: Access and equity for all

National Patient Organisation Network (NPON)

ACCN Innovations Showcase 2025

Radio National Interview: Changing Australia June 2025

Adelaide NET Patient Forum 2025

CNSA & ICCN 2025 Congress: Global Voices, Local Actions

Announcing our First Patient Ambassador – Cassie Miller

Bringing Together Experts to Improve NET Patient Care: NECA at the 5th NET Preceptorship

Our NET Nurses are here to help support you from diagnosis to treatment, and living well with NETs.

Free and confidential, our NET nurses are available Monday – Friday, 9am – 5pm (AEDT).