Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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NECA Strategy Day 2025

NET Patient Chris, from Ballarat, Raises Awareness of Neuroendocrine Cancer

Help Us Grow: Connect NECA with Corporate Partners to Make a Lasting Impact

Parliament House representation for Federal Budget briefings

VHL in the news March 2025

Bunbury Support Group raises awareness of March4NETs

Advancing VHL Care: Clinicians Unite for a Multidisciplinary Approach

NECA at ENETS 2025: Advancing NET Care on the Global Stage

AGIG Steps Up Again to Support March4NETs in 2025

Channel 7 reports on life changing access to Belzutifan for VHL Patients

CommNETs 2024 Conference

Belzutifan listed on PBS 1st December 2024

Steve and Jakes Everesting Challenge – thank you!

Racing for a Cure 2024

Meet with your local MP and help improve NET patient care.

AUS-NET October 2024 update

Our NET Nurses are here to help support you from diagnosis to treatment, and living well with NETs.

Free and confidential, our NET nurses are available Monday – Friday, 9am – 5pm (AEDT).