Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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Improving referral pathways from regional areas to NET centres of excellence

The Australian Cancer Plan

6th Theranostics World Congress

Cancer Nurses Society of Australia 24th Annual Congress

The Future of Precision Oncology in Nuclear Medicine – Report

NeuroEndocrine Cancer Australia & Macquarie University study on important online resources for NET patients.

University of South Australia -Volunteers needed nationally.

Expression-of-Interest for consumer participation on Grant Review Committees for the 2022 Priority-driven Collaborative Cancer Research Scheme

European Neuroendocrine Tumor Society (ENETS) 2022 Guidance Paper for Carcinoid Syndrome and Carcinoid Heart Disease

ENETS 2022

Wellness Day 2022

NECA proud to be an integral part of the AUSNET trial

Action plan support – short videos wanted!

Introducing Australian Rare Cancer Portal

Call Out for a Consumer Advisory Representative from Tasmania / South Australia

Call Out for a Consumer Advisory Representative from WA

Our NET Nurses are here to help support you from diagnosis to treatment, and living well with NETs.

Free and confidential, our NET nurses are available Monday – Friday, 9am – 5pm (AEDT).