Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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Bunbury Support Group raises awareness of March4NETs

Advancing VHL Care: Clinicians Unite for a Multidisciplinary Approach

NECA at ENETS 2025: Advancing NET Care on the Global Stage

AGIG Steps Up Again to Support March4NETs in 2025

Channel 7 reports on life changing access to Belzutifan for VHL Patients

Belzutifan listed on PBS 1st December 2024

Steve and Jakes Everesting Challenge – thank you!

Meet with your local MP and help improve NET patient care.

Biomarkers to Inform Prognosis and Treatment for Unresectable or Metastatic GEP-NENs

12th INCA Global NET Cancer Advocate Summit

NeuroEndocrine Cancer Australia Celebrates Groundbreaking PBS Recommendation of Life-Changing Treatment for Von Hippel-Lindau (VHL) Patients.

CanForum 2024 – A Rare Cancer Moonshot

VHL Awareness Event at Parliament House Highlights Urgent Need for Belzutifan Approval

Neuroendocrine Cancer Day

Neuroendocrine Cancer Day is on 10 November, and every bit of support counts.

Create an event, share your artwork, or donate on our ‘Double Your Impact’ days. There are so many ways to stand with the NET community.