Von Hippel-Lindau (VHL) Parliamentary Event

NECA has invited you to the following meeting: Von Hippel-Lindau (VHL) Parliamentary Event which will be held on 4th July 2024 at Parliament House – Dorothy Tangney Alcove

Meeting Agenda

Von Hippel Lindau Syndrome Parliamentary Event

When: Thursday 4 July 2024 – 10am – 12pm

Where: Dame Dorothy Tangney Alcove – APH – the area can hold 80 people in banquet style.

Program Speaker
10am – 10.30am Arrival – Tea / Coffee – morning tea
10.30am Welcome by Host MP, NECA Hon Zali Steggall MP

Meredith Cummins CEO

10.35am Opening of Event Hon Ged Kearney MP
10.45am Panel Facilitator & welcome panelists

A/Prof Kathy Tucker (Genetic Specialist)
Dr Minmin Li (Genetic Specialist)
Dr John Leyden (Anesthetist / family member)
Ryan Harding (VHL patient)
Chris Jankulovski (VHL patient)
Amelia Ramsay (VHL patient)

Michael Usher

(NECA Ambassador)

11.30am Open for Q&A All in attendance
12.00pm Close of Event Hon Zali Steggall MP

Meredith Cummins CEO

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