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Home » Patient Stories » Page 4

Patient Stories

Read more about the experiences of fellow NET patients and also check out our Patient Stories videos on Youtube.

Suzie, NSW

Looking back, I had lower right pain (in my body) for two years prior… I just knew something didn’t add up
View Suzie, NSW's Story

Mel, WA

They found a tumour about the size of a tennis ball on my pancreas… It’s a shame that it takes a diagnosis like this to change the way people live their life.
View Mel, WA's Story

Sandi, NSW

Being told you have an incurable cancer is a big moment to process… My symptoms were quite acute and they had a very sudden onset. Abdominal pain, cramping, vomiting, sweating
View Sandi, NSW's Story

Brad, WA

4-6 months before diagnosis I was losing a lot of weight…I was on a holiday in Hawaii and I just couldn’t stomach any food
View Brad, WA's Story

Jamie, SA

In 2010 when Jamie was only 32 years old, with a 6-month-old baby at home and the world at her feet, she was diagnosed with a mid-gut neuroendocrine tumour (NET).
View Jamie, SA's Story

Bree, NSW

About a week or so after Zara was born and Bree was at home, she found herself on the shower floor in pain and new she needed to return to the hospital for answers.
View Bree, NSW's Story

Michele, WA

My surgery was a success. It went for 10 hours, they had previously predicted it could take up to 15 hours. I was in the ICU for 2 days then I was on ward for nearly 3 weeks. I went back to work on a part time basis after 6 weeks. In hindsight I should have given myself longer to heal.
View Michele, WA's Story

Amy, NSW

I was diagnosed with NEC high grade small cell neuroendocrine carcinoma in a duplication cyst of my colon. I was born with a duplicate colon I never knew about and my cancer was found within it.
View Amy, NSW's Story

Ros, TAS

After testing positive for SDHB the rest of my family, including a large extended family, were tested. 75% of my (extended) family members tested are positive for SDHB, which is around 25 people.
View Ros, TAS's Story

Paul, NSW

As soon as he woke his words were “they found something else”? He had been on the rounds with Doctor’s for years trying to find out what was wrong with his stomach.
View Paul, NSW's Story
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