Patient Stories Archive - Page 4 of 10 - NeuroEndocrine Cancer Australia

Jeffrey, VIC

At age 75, I remain in perfect health and have no symptoms from the disease or treatment. I maintain an active lifestyle and walk 10 kms most days, as well as cycle, swim, kayak and maintain my house and garden. I eat an anti-inflammatory diet and keep my weight in trim.

Suzie, NSW

Looking back, I had lower right pain (in my body) for two years prior… I just knew something didn’t add up

Mel, WA

They found a tumour about the size of a tennis ball on my pancreas… It’s a shame that it takes a diagnosis like this to change the way people live their life.

Sandi, NSW

Being told you have an incurable cancer is a big moment to process… My symptoms were quite acute and they had a very sudden onset. Abdominal pain, cramping, vomiting, sweating

Brad, WA

4-6 months before diagnosis I was losing a lot of weight…I was on a holiday in Hawaii and I just couldn’t stomach any food

Jamie, SA

In 2010 when Jamie was only 32 years old, with a 6-month-old baby at home and the world at her feet, she was diagnosed with a mid-gut neuroendocrine tumour (NET).

Bree, NSW

About a week or so after Zara was born and Bree was at home, she found herself on the shower floor in pain and new she needed to return to the hospital for answers.

Michele, WA

My surgery was a success. It went for 10 hours, they had previously predicted it could take up to 15 hours. I was in the ICU for 2 days then I was on ward for nearly 3 weeks. I went back to work on a part time basis after 6 weeks. In hindsight I should have given myself longer to heal.

Amy, NSW

I was diagnosed with NEC high grade small cell neuroendocrine carcinoma in a duplication cyst of my colon. I was born with a duplicate colon I never knew about and my cancer was found within it.

Ros, TAS

After testing positive for SDHB the rest of my family, including a large extended family, were tested. 75% of my (extended) family members tested are positive for SDHB, which is around 25 people.